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Hi, I'm johnstle! Experiences of parastomal hernia?

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johnstle
johnstle Community member Posts: 2 Listener
edited March 2023 in Physical and neurological impairments
Hello everyone. I have had a stoma for nearly 4 years and have developed a large parastomal hernia. I had unsuccessful surgery in September to correct the problem and over the last month or so I have got 2 ulcers one of which is discharging puss. Has anyone else had this problem and if so how was it treated 
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  • poppy123456
    poppy123456 Community member Posts: 55,582 Disability Gamechanger
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    I’m afraid we are not medical professionals so can’t give any medical advice. If you have any concerns then you need to speak to your GP. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • johnstle
    johnstle Community member Posts: 2 Listener
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    Ok thanks I thought it was a forum for discussions I stand corrected. Best of luck to you all, I will see if I can find another forum somewhere else 
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  • poppy123456
    poppy123456 Community member Posts: 55,582 Disability Gamechanger
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    Indeed it is but we can’t give medical advice and doing so is against the forum rules. https://www.scope.org.uk/community-house-rules/?_ga=2.29935478.836862738.1679144700-2049403996.1610998196
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    edited March 2023
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    Hi @johnstle and welcome to our online community, how are you today?

    You're right, we can talk and share experiences of conditions but as you understand we wouldn't inadvertently want to give people incorrect advice around treatment.

    I have Crohn's disease so can empathise with having abdomen/bowel pain, but haven't had surgery or experienced a hernia before. What have your hospital team/stoma nurse said about it? And, how are you managing the puss? 

    I've changed the title of your thread to see if I can attract the eyes of others who may have gone through the same, to share their story. And also, moved your thread to our 'Physical and neurological impairments' category.

    We wish you all the best for getting it treated effectively and quickly. Take care and have a lovely Sunday.
    Online Community Co-ordinator

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  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @johnstle

    I hope you are well? I also have a stoma and I am so sorry to hear your surgery for your hernia was unsuccessful. 

    I would speak to your Stoma nurse and surgeon about how and why the surgery was unsuccessful and see if they can recommend another course. For example, could the stoma be moved to ensure a better repair on the hernia? Can I ask, has your stoma nurse gone through hernia support garments with you? 
    Hannah - She / Her

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