Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Super Pubic Catheter

Options
Martin1957
Martin1957 Community member Posts: 24 Connected
Having had a super pubic catheter fitted in October 2022 after Cudia equine in 2019 2 major spinal operations and a spinal cord simulator fitted 12 weeks ago back to the catheter  i had 11 weeks of heaven all working correctly then it was into hospital for a routine change, since then it has been an absolute nightmare Im in constant pain  had 4 UTI,s 3 7 day stays in hospital trying to sort it out.  7 more catheter changes in the last 4 months due to Constant blockages,major painful spasms, bladder irritation bypass leaking nearly as bad as before i had it fitted.
Is anyone else having the same problems as myself
Its now really starting to effect my mental state.where i feel i would just be better of not been here.

I would love to know if anyone else is suffer like me as you seam to just get lip service and no real results

Comments

  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,561 Disability Gamechanger
    Options
    Hello there @Martin1957 thanks for reaching out, it sounds like a real nightmare for you lately, I'm sorry to hear how all this is making you feel. Have you spoken to your GP about the effect on your mental state?

    You feel you're not being heard by those responsible for your medical care, so are you getting enough support to manage things at home?

    It can help to talk about how we're feeling, so it's positive to see you've reached out here on the forum.

    If you feel like you need some extra support for your wellbeing you can self-refer for mental health help.
    You can also call Samaritans on 116 123 or email jo@samaritans.org to find someone who can listen and support you without judgement. 

    Additionally, you can also text 'SHOUT' to 85258 for free help anytime. 

    For now I'll mark your post as unanswered, and hopefully any members with similar experiences can share their thoughts. If we can assist further, please ask.
    Online Community Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.