Super Pubic Catheter

Martin1957

Having had a super pubic catheter fitted in October 2022 after Cudia equine in 2019 2 major spinal operations and a spinal cord simulator fitted 12 weeks ago back to the catheter  i had 11 weeks of heaven all working correctly then it was into hospital for a routine change, since then it has been an absolute nightmare Im in constant pain  had 4 UTI,s 3 7 day stays in hospital trying to sort it out.  7 more catheter changes in the last 4 months due to Constant blockages,major painful spasms, bladder irritation bypass leaking nearly as bad as before i had it fitted.
Is anyone else having the same problems as myself
Its now really starting to effect my mental state.where i feel i would just be better of not been here.

I would love to know if anyone else is suffer like me as you seam to just get lip service and no real results

Alex_Alumni

Hello there @Martin1957 thanks for reaching out, it sounds like a real nightmare for you lately, I'm sorry to hear how all this is making you feel. Have you spoken to your GP about the effect on your mental state?

You feel you're not being heard by those responsible for your medical care, so are you getting enough support to manage things at home?

It can help to talk about how we're feeling, so it's positive to see you've reached out here on the forum.

If you feel like you need some extra support for your wellbeing you can self-refer for mental health help.
You can also call Samaritans on 116 123 or email jo@samaritans.org to find someone who can listen and support you without judgement. 

Additionally, you can also text 'SHOUT' to 85258 for free help anytime. 

For now I'll mark your post as unanswered, and hopefully any members with similar experiences can share their thoughts. If we can assist further, please ask.