Cerebral Palsy and transitioning from child to adult care - Survey participants needed for MSc study

charlotte_OT

Hi! 

I'm Charlotte, an MSc Occupational Therapy student currently completing my dissertation on the transition from child to adult care for people with CP. 

I'm looking for participants aged 18-30 with Cerebral Palsy in the UK to answer an anonymous 15-minute survey about their experiences with OT and transitioning from paediatric services in the NHS. 

I really appreciate you taking the time and any survey responses will be a massive support! If you have any questions please get in contact 

Thank you! 

Survey link: 

https://brunel.onlinesurveys.ac.uk/navigating-the-transition-from-paediatric-to-adult-healthc 

Cher_Alumni

Hello @charlotte_OT and welcome to our online community.

We wish you luck with your study and I can confirm to all members that it has been checked and verified as safe to participate in

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charlotte_OT

Thanks to anyone who's participated so far! We're still actively looking for participants and really appreciate anyone eligible taking the time to have a look. It should only take 10 minutes, all questions are optional, and you can give as much or as little detail as you like in your answers! 

Thank you 😊

Ema_Scope

@charlotte_OT
would you be willing to share your findings with us? my team would be interested. My email address is ema.thornhill@scope.org.uk

forgoodnesssake

My son (25) fits your criteria but is not on this forum and as a student is a bit busy with exams at the moment so i don't think he'll have time anyway.  But I can tell you from my perspective as his health care co-ordinator (aka mother...) that there was no transition...once he got to 18 all regular input stopped and even though he has no speech and uses AAC plus needs a blended diet he has no SALT, no OT and only some ad hoc physio to advise his care/support team about suitable gym equipment and bikes!  Also as his support is now fully funded NHS Continuing healthcare he has no access to a Social Worker at all as NHS is expected to cover all bases if someone is fully CHC funded.... I am happy to  fill in the questionnaire but didn;t know if you'd want it "third party" or not. 

charlotte_OT

@Ema_Scope, of course! A summary of findings will be written up alongside my dissertation; happy to email that over when it's available 

charlotte_OT

@forgoodnesssake Hi there, thanks so much for the comment, and so sorry that's been your son's experience - it's all too common at the moment and why research into this area is so essential! 

On the first page of the survey, an option is provided for family/carer/friend to complete on behalf of the individual with CP for those unable to complete it themselves, as long as you have the consent of the individual 😊

charlotte_OT

*Reminder - This survey closes Thursday, 1/6/23*