Hi, my name is Pinkpoppi! Been referred for a MRI

Pinkpoppi

I’m scared as I’m waiting for blood test results then neurologist will decide next steps. I went for normal physio appointment and came out with neurology appointment for an hour later. MRI showed disintegrated bone on my neck with hardly any fluid left. Only my husband knows until we have more info and I swing between being glad to be alive, and terrified. Thank goodness for the lovely NHS physio who referred me for MRI. Has  anyone been through something similar?
      Pinkpop

Hannah_Alumni

Hello @Pinkpoppi

Welcome to the community!  

I'm so sorry to hear you are terrified, I am keeping everything crossed for your results! 

I have popped your thread into our Physical and Neurological Impairments section of the forum, to see if anyone can share in your experience. As we are not medical professionals we don't give out medical advice and always encourage you to speak to your GP or specialist about that. Hopefully you'll have someone who knows a little bit more for you to vent with, but we are all here to listen  

Pinkpoppi

Thank you Hannah 🤗 I’m not looking for medical answers at this stage, just some understanding of how I feel (apart from swinging from worrying to being relieved) and what did others in this situation tell others. 

Hannah, how do I get to the site you mentioned? 

Pinkpoppi x

Sandy_123

Hi @Pinkpoppy welcome. I can understand you feeling worried, as it all happened quickly and without knowing. 
When do you get your blood tests?  Fingers crossed for all your results and next steps. 

chiarieds

Hi @Pinkpoppi - on this forum there are different sections/categories & you can see the 'Physical & Neurological Impairments' one here if you click on this link: https://forum.scope.org.uk/categories/physical-and-neurological-impairments

I feel it's always good to find out more, then hopefully you get answers & more understanding, & help whenever possible. Now do you feel any different from before your physio appointment to when your physio requested a neurology appointment with a MRI then following?

Sometimes things are found that a person has been completely unaware of & therefore only finds out if they have a MRI due to something else; this is called an incidental finding. Some people have MRIs that seem to show a problem, yet have no apparent difficulty whatsoever.

A MRI is a diagnostic tool, but needs to be part of the clinical picture to work out what your problems may be, just like your blood tests. They are all part of finding out what your problems are in order to help; I'm sure your GP will do so looking at all of your results.

 

Hannah_Alumni

I see chiarieds has posted the link for you  

There are many here with varying illnesses and disabilities and we all know the dreaded wait! I was once emotionally swinging back and forth. I ended up starting to research my family history and that certainly kept me busy! Do you have any hobbies? 

Wibbles

I've had at least 12 MRI's over the last 33 years - I must have been a guinea pig for early MRI's in UK ?

In themselves they are nothing at all to be concerned about

You lie in a "Tube" - with headphones on playing your choice of music

There is a throbbing that you half feel and half hear - the tone of the throbbing changes several times and 10 minutes later, it is all over .....

You feel absolutely no pain at all - it is slightly disconcerting lying in a confined tunnel - but just close your eyes and try to relax

WelshBlue

I remember going for my first MRi ... before I went in I was talking to an elderly man who had just had his

His words ... It's Okay but I wasn't keen on that rave music 

Strange music to give him at his age, I thought to myself.

How I kept myself still when the thrumming and throbbing started as the scanner did it's thing, I'll never know.  Laughing inside doesn't cover it.

I had my 6th one last year and I thought of him fondly.  Now I fall asleep in them

Good luck @Pinkpoppi with the diagnosis ... there's nothing to the scan, being told to keep still is the hardest