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PIP timescales & expectations

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tonylw1
tonylw1 Community member Posts: 3 Listener
edited July 2023 in PIP, DLA, and AA
Hello. Firstly forgive me for asking questions that may have been answered elsewhere. For many months I've been in serious pain (lower back & hips). Mobility has become challenging and general weariness making me forgetful. 
Historically I had standard rate PIP awarded since Leukaemia recovery had wiped me out but returned to work the following year.

Unfortunately I stopped PIP but energy levels couldn't deliver the expected 60hrs a week and in 2016 I got let go. Longer term issues (demylination and brain damage) from the chemo kicked in causing serious neurological MS-like problems including incontinence, poor balance and lots of other stuff recorded by my GP.

An MRI scan and consultant has diagnosed severe arthritis in lower spine and both hips, waiting for urgent follow-up from consultant, meanwhile taking copious codeine to manage pain. These latest issues having affected my ability to walk even 50-60ft with stick, living by myself and struggle or unable to do basics including cleaning  caused GP to recommend applying for PIP. The speed of decline is frightening.

I rang the PIP line in early May '23, completing and submitting the form within five days together with supporting medical evidence as requested. Had on-line Capita  assessment as unable to travel in mid-June. Got copy of assessment report indicating 9 points for Daily bit and 12 points for mobility. Received 'no decision' text last week and all info needed 0502 letter today. 

I'm trying to be laid back but in bits internally as really do need help day to day and mobility. 

What happens next and when? Any help gratefully appreciated.

Comments

  • poppy123456
    poppy123456 Community member Posts: 57,180 Disability Gamechanger
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    Once the report was a returned a decision can take anything up to 12 weeks. Once a decision is made you will be contacted. Nothing more you can do but wait.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • tonylw1
    tonylw1 Community member Posts: 3 Listener
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    Had enough sleeping on floor or sofa when unable to get upstairs (not drinking either) Sleepless nights add to weariness and wary of Codeine dependency for pain control. Missing walking and being able to do basics. Better than my 2014 leukaemia prognosis though. I'll wait and many thanks for your kind input. Fingers crossed. 
  • tonylw1
    tonylw1 Community member Posts: 3 Listener
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    Update. 14.07.23. Credited bank account within nine weeks of original application but no text or letter. Thank you.
  • Adrian_Scope
    Adrian_Scope Posts: 11,393 Scope online community team
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    Great news you've been awarded @tonylw1. Hopefully your award letter will arrive soon so you can see what has been decided.
    Is it possible for arrangements to be made so you have somewhere comfortable to sleep downstairs when the stairs aren't an option for you?
    Community Manager
    Scope
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