Have I the right to live in the community?

martie1118
martie1118 Online Community Member Posts: 41 Connected

I don't know what to do. I am sixty-five who suffers from Cerebral Palsy and Epilepsy, Social Services wants to do either flats side by side - own carers (which I didn't believe I will have my carers for long, also they want to cut their pay), I know if they move that I will just the will to live is that what they want? Live in carer (live in carer - without using showers, cooking their own food, washing their own clothes) which my sister and I don't want. I keep carers aware most of the night now, at least they go home to bed, whereas a live in carer cannot, isn't that extremely dangerous for me, I honestly thought Social Services where there to protect vulnerable people and not putting them in danger. This means I won't be going out or going to any of my Doctor / Hospital appointments because I will not put myself in danger because they are extremely tired. They took it off me under false pretences, I never been told by anyone from Social Services that I can appeal for my self-funding back, surely, I have the right to appeal it was, they who took it away. two of ex carers made up lies about me. Then suddenly Social Services dropped he eleven allegations and said that came up with that I wasn't paying my contributions towards my care, my sister had a phone call from Social Services to say stop paying y contributions and my sister went her bank and did this. I keep asking myself why this the only occasion is they did not send us a letter to confirm this, they do any other time, and we always keep them. I was told by Social Services that I won't be allowed to appeal why I haven't done anything wrong, and I can prove it, but they just will not listen or look at my paperwork, why? Haven't I got the right to stay in the community and be self-funding, my trustworthy have been for years. Please forgive my typing I'm physically disabled and I'm crying, please help me.

Comments

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @martie1118

    Welcome to the community! :) 

    I'm so sorry to hear what you have been going through. It does sound like a complex situation. I would advise reaching out to Citizen's Advice for support on this.

    Please keep us updated. I hope the community can be a place for you to make friends and vent <3
  • martie1118
    martie1118 Online Community Member Posts: 41 Connected
    I have talked to Citizen's Advice and I get any advice from anywhere else, I am desperate for help please.  
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Did it not go well talking to Citizen's Advice @martie1118? Hopefully, we will have someone who has personal experience or more knowledge about this who can help you soon. In the meantime, we are all here for you and listening to you - you don't have to go through this alone if you don't want to. Though, I recognise and appreciate it may feel like you are alone at the moment, as so far no one has been able to help you with this unfortunately  :(
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @martie1118

    I am so sorry that Citizen's Advice were unable to help. They do have a page on finding free or affordable legal help which may be useful to read.
  • martie1118
    martie1118 Online Community Member Posts: 41 Connected
    social services have made me out to look like a thief and liar and I never been any of them in my life, my direct Payments was stopped they said that I was misusing the money, how could I it was in an account which only social services had control of and social services won't let me appeal so I can prove that I am not a thief or a liar. 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    @martie1118 I'm so sorry you are having to deal with that. I would really encourage you to reach out to Citizen's Advice on this. We unfortunately don't have the legal knowledge on a situation like this. 

    But please know we are hear if you need to vent <3 
  • martie1118
    martie1118 Online Community Member Posts: 41 Connected
    I have talked to CAB and said things that I have already been doing. Are social services above the UK Law because they found me guilty and won't let me know what evidence they got so I can prove the wrong. I have files and files of letters from social services which I received from them, and they didn't like that, I am desperately unhappy, Please HELP ME 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    I'm so sorry, it is something you would need legal advice on. The only other support I can think that could help is by reaching out to your MP. I am aware that it is the summer holidays for them at the moment though. 
  • martie1118
    martie1118 Online Community Member Posts: 41 Connected
    Our MP keep saying there is nothing she can do with her as always. Lawyers once they know I up against social services they no what do I do just sit there and take what they are saying about me which I they are so wrong and what makes it hurtful I know I can prove them wrong, but they won't let me. Could anyone tell are social services are above the UK Law because everyone who I turn to as just pushed me away. I have been made to feel ashamed to be disabled by social services and I should be anywhere but here, sorry to say it.   
  • Richard_Scope
    Richard_Scope Posts: 3,700 Cerebral Palsy Network
    @martie1118 you have the right to appeal and you have the right to live in your community. Do you currently have a social worker? Are your Direct Payments handled by a company like Pendrels or does your sister deal with them?
    I understand that you don't want a live-in carer, that your decision or your sister's? Live-in care can and does work well.
  • martie1118
    martie1118 Online Community Member Posts: 41 Connected
    edited August 2023
    Hi Richard. 
    it is no good asking my social worker as she got me into this mess, she said I can unfortunately appeal and the Service Delivery Manager is saying no, I cannot understand because I  found out she is only responsible for overseeing the provision of services to clients and ensuring that the business can provide good customer service. They do not have the authority is deny an individual’s right to appeal for direct payments. If you have concerns about your right to appeal for direct payments, you may want to contact the relevant authority or organization responsible for handling such requests. The Service Delivery Manager said i will never be offered direct payments again as I misused it, I cannot understand how I could misuse it because they persuaded me to put it into a fair share account which I had no access to whatsoever only social service so how could I misuse it. I noticed in the statements of the account the balance was moving wildly up and down as social service were putting the money in and taking it out and I can't tell why as it wasn't for my care, they closed the account with my name on without telling me and taking all the money out is that legal or illegal. my sister was paying my contributions for about 9 years and the social worker could find no record of this ever being played my sister could prove it with her bank statements isn't it right to have proof from social service they have found this or not because up to now they haven't offered any proof whatsoever. I feel they have found me guilty in their own court surly i have the right to prove myself innocent but social service have not given me that right, is social service above the law and got their own judge and jury in their offices. I have been everywhere for advice and help and got nowhere they seem to not want to get involved with social service. Is a way to make social services to give me an appeal because they in wrong and I am not?  
  • Richard_Scope
    Richard_Scope Posts: 3,700 Cerebral Palsy Network
    @martie1118, you have the absolute right to see any documentary evidence including all financial records that they hold.
    You should have received a letter outlining why your direct payments have been stopped with this evidence.
    I am more than happy to speak to your social worker to help try to resolve this situation but if you do not want me to do this, I would suggest that you make contact with the Voicebility Advocacy Service or the Disability Rights UK Independent Living Advice Line that gives advice on getting direct payments and managing them.

    Disability Rights UK Independent Living Advice Line

    Tel: 0300 555 1525 (Mon and Thurs 9.00am to 1.00pm)

    Email: independentliving@disabilityrightsuk.org

  • Richard_Scope
    Richard_Scope Posts: 3,700 Cerebral Palsy Network
    @martie1118 I have had to delete your previous post. You cannot put people's names and telephone numbers in the community. Please email me, richard.luke@scope.org.uk
  • martie1118
    martie1118 Online Community Member Posts: 41 Connected
    edited August 2023
    sorry
  • Richard_Scope
    Richard_Scope Posts: 3,700 Cerebral Palsy Network
    @martie1118, email merichard.luke@scope.org.uk