Hi, my name is Ryan

Ryan7
Ryan7 Online Community Member, CP Network Posts: 24 Connected
in Start here and say hello!
I'm 26, living in Cornwall and I like playing guitar and sailing and I have CP
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Comments

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @Ryan7

    Welcome to the community! :) How are you today? How long have you been playing the guitar for? 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    I have been playing for 10 years now.  It makes me feel halp when I finished a song. 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    I'm all good thank you. Hope you're keeping well. 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Wow! That's great :) Do you prefer to play electric or acoustic? 

    I'm good thanks, glad to hear you are well :) 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    I play both on my guitar. It help me with my CP I love the 80s music 




  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    hello hello sorry I have been busy with work for a few day. I’m all well just really tired at the moment. How you all well
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Ooo! Do you have a favourite 80's artist? 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    Def Leppard 100% I play some of there song on my guitar 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    That's great! and good choice! immediately started singing Pour Some Sugar On Me in my head reading that  :D
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    Love bites hysteria and god of war is my favourite for me. 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Good choices! We have a thread called Music you are listening to which I think you'd like :) 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    Can't wait for it. I have been playing on my guitar for 10 year. Unfortunately the pass 2 years my cerebral palsy have got worse and it has effect my mental health. Playing the guitar has help me to manage to deal with it. 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    I'm sorry to hear that your CP has gotten worse. I am going to tag @Richard_Scope here. Richard is our Cerebral Palsy Network Lead. The CP Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales :)
  • Richard_Scope
    Richard_Scope Posts: 3,699 Cerebral Palsy Network
    Hi @Ryan7
    Good to meet you. I'm a big music fan myself. I've always wanted to play the guitar but my dexterity isn't great. 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    Hi Richard I always grow up with music in the 80s. I love Metallica. I think when I finished the the song you feel good as you learn the song on your own
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    hi everyone I was just wondering if any of you had Botox before as I’m going to try have have it in my legs hopefully in the next few months. Just wanted to see if it worked for any of you?? Really sorry to ask 
  • SpookySez
    SpookySez Online Community Member Posts: 5 Listener
    Hi @Ryan7 is to try and stop the spasms? I have botox in my head for migraines had two treatments so far that seem to be working and i definitely relaxes the muscles round my neck where they inject. I have been told I can have them for my spasms in my leg if the medicines im on doesnt work so Im interested in this too. From researching it though it seems quite promising. 
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    hi @SpookySez yeah it’s it’s like shooting pain going straight down my legs.  I have been on medication the pass 2 years. It get my by the day put still in a lot of pain when I wake up. I’m trying to do yoga a bit to help put it been very frustrating. I know my friend unfortunately suffered a aneurysm. For 3 year she tried everything as she had a headache every day. She tried Botox January last year for her head and it worked. It’s crazy how Botox can actually benefit someone people. 
  • SpookySez
    SpookySez Online Community Member Posts: 5 Listener
    Im sorry about your friend @Ryan7 , fingers crossed you get the botox as I agree the pain is so intense when those spasms hit :(   I agree that the botox  is crazy that it can be used for so many things it didnt do anything for my forehead wrinkles though  :D
  • Ryan7
    Ryan7 Online Community Member, CP Network Posts: 24 Connected
    @SpookySez well they all say you look younger if you have Botox in the face 😂😂

    For my friend she just had a baby 👶 girl 2 months ago called Poppy. I'm so blessed as I'm a uncle already to my Sister kid called Xander who is 7 in a few months time. my mate said I can have a niece now. 

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