Dla renewals and carers allowance — Scope | Disability forum
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Dla renewals and carers allowance

Houdini Community member Posts: 1 Listener
just looking for some advice please.
we were awarded dla for our son(he’s 5 yrs old)2 year ago amongst concerns he was autistic.Since then he has been officially diagnosed with the following-
Selective mutism 
Chromosome microdeletion 23.1
vitamin d deficiency 
We have sent our renewal away and been informed it may take up to 15 weeks.
it’s due to end 29/08/2023 and we have just been informed his carers allowance will end on the same date unless he’s entitled to any benefits.This is our first time having to renew and it’s causing a lot of worry and anxiety in the family.Wehave supplies them with letters from his diagnosis and the genetics lab and all his speech therapy/calms/sips and his send from his school.
We are so worried it gets stopped despite everything we have sent them
any advice?


  • poppy123456
    poppy123456 Community member Posts: 49,618 Disability Gamechanger
    I don’t think anyone can predict what the decision will be. I do know that there are backlogs with DLA decisions. 

    Once a decision is made you will be sent the decision letter. Hopefully you’re not waiting too much longer.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • bg844
    bg844 Community member Posts: 3,869 Disability Gamechanger
    Give DLA a ring a week before the claim is supposed to end, I have seen them make ‘urgent’ decisions for outstanding claims at this point but not guaranteed and very few people post on here about DLA claims so I can’t check that’s correct right now.

    It’s 18 weeks at the moment for decisions too, sometimes longer.
  • Adrian_Scope
    Adrian_Scope Posts: 9,786 Scope online community team
    Anecdotally from other claimants and speaking to a DLA decision maker recently, it's my understanding that they're leaving renewals until just before the renewal date so you might not hear until just before the end date. As @bg844 mentions, if you've not heard a week before, give DLA a call. Hopefully you won't be waiting too much longer @Houdini. :) 
    Community Manager


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