Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

PIP review - mostly great news & some questions

Options
66Mustang
66Mustang Community member Posts: 14,981 Disability Gamechanger

Hello.

I have just had my PIP renewal decision. 16 points for daily life and 12 points for mobility.

I was hoping for, and thought I deserved, the mobility. In my view I only deserved to be awarded standard daily living. However, they are the experts, I am not complaining, and I can see why I scored more points.

I have been awarded for 2 years, 9 months. This means in around 2 years I will be starting the process all over again. Several of my conditions are lifelong and are unlikely to change.

In honesty I would have rather been awarded lower daily living but for a longer time period. Alas, I know this is not possible now and the award amount is set in stone. However… I believe I can have the length of award looked at.

I have a few questions…

- is it true you can ask for the length of the award to be re-considered, without affecting the award itself?

- if yes, is there a possibility they could shorten the length of the award, as well as lengthen it?

- if yes, based on your knowledge & experience, would you ask for the award length to be looked at or would you be happy with 2 years 9 months and worry about renewing again when that time comes?

The process has caused me some anguish, but looking back, I believe I was unnecessarily stressed and would not be as stressed next time. It was a relatively smooth process.

Thank you. :)

Comments

  • poppy123456
    poppy123456 Community member Posts: 57,114 Disability Gamechanger
    Options
    Although you didn't think you were entitled to Enhanced daily living, it's not unusual to be awarded more points than you expected. It can happen if you don't fully understand the descriptors and what they mean.

    Yes, you can request the MR based on the award length itself. You will need to make sure you make it clear that you're happy with the award itself and just explain why you think you should have been awarded for a longer time. Make sure you go into full details of why your conditions are very unlikely to change too.  Even if they do look at the whole award again, the most likely outcome of the MR decision will be it won't change.

    Thinking back to my daughters first review in 2019 when i asked for a longer award length, they awarded for just 2 years again. I spoke to a decision maker who told me that it's totally normal for someone so young to be awarded for a shorter time because there's more chance of changes happening. Of course this was complete and utter rubbish. ASD and a learning disability doesn't improve with age and she already had the highest award at the time. My only problem was i just didn't have the energy to challenge it so left it as it was. Her next review she was awarded for 7 years so much better.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • 66Mustang
    66Mustang Community member Posts: 14,981 Disability Gamechanger
    Options
    Thanks Poppy, that is good to hear your experience of your daughter's award as well. I am thinking to do as you did and just keep it and use time to recharge and psych myself up again. If nothing has changed in 2 years I am confident I will get awarded the same again. Of course if I am better in 2 years I will happily say so.

    Thanks. :)
  • poppy123456
    poppy123456 Community member Posts: 57,114 Disability Gamechanger
    Options
    You're welcome. Please don't think i was saying that to put you off, i wasn't. You should do what you feel is right for you.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Biblioklept
    Biblioklept Community member Posts: 4,991 Disability Gamechanger
    edited August 2023
    Options
    My first PIP award was only 18 months and like you, most of my conditions are life-long. 

    Although I was lucky to receive a paper-based decision I was a bit disappointed with the award length as the idea of going through the form again a year later was devastating. I considered appealing the length but knew I would never go through with is so saved my strength and at my renewal I wrote quite a lot about why I felt the award length last time was wrong and how my conditions aren't likely to change, and explained how long they had impacted me and obviously ASD and ADHD are lifelong, and was given a much longer award at review <3
  • 66Mustang
    66Mustang Community member Posts: 14,981 Disability Gamechanger
    Options
    Thanks @Biblioklept for the tips/experience and nice to see you posting again :) 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,911 Disability Gamechanger
    Options
    I'm glad to hear the renewal decision went well @66Mustang! :) 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
  • 66Mustang
    66Mustang Community member Posts: 14,981 Disability Gamechanger
    Options
  • Lou67
    Lou67 Community member Posts: 8,405 Disability Gamechanger
    Options

    @66Mustang
    Glad you got Review went well apart from your length of time. 
    Hopefully with the good advice you have been given above you will hopefully be awarded longer amount of time the next review you do.

    ❤️
  • WelshBlue
    WelshBlue Community member Posts: 770 Disability Gamechanger
    Options
    Congrats mate

    Never feel like you don't deserve a higher award.  You don't get it unless the points stack up
    I remember the shock of my review and going from Standard to Enhanced DL ... all because the DM asked the questions that gave me the extra points.  Things I didn't think mattered, but which do impact on me every day.

    Enjoy the extra £££... treat yourself to a few beers  :) ... and good luck if you request a MR on length of award
  • 66Mustang
    66Mustang Community member Posts: 14,981 Disability Gamechanger
    Options
    Thank you for the kind words everyone :)
Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.