Hi, my name is GerryO! BASRIS form query — Scope | Disability forum
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Hi, my name is GerryO! BASRIS form query

GerryO
GerryO Community member Posts: 4 Listener
edited August 19 in Benefits and financial support
Hello
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  • GerryO
    GerryO Community member Posts: 4 Listener
    My consultant has refused to fill out a BASRIS form stating I am not ill enough yet.
    I have IPF (pulmonary fibrosis)
    My condition is Terminal, progressive and no medication will cure.
    as my condition is terminal should my consultant not have filled out the BASRIS as soon as my condition was diagnosed.
    any help with this process would very much appreciated
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  • Hannah_Scope
    Hannah_Scope Posts: 5,985 Disability Gamechanger
    Hello @GerryO

    Welcome to the community! :) You well? 
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • chiarieds
    chiarieds Community member Posts: 15,465 Disability Gamechanger
    Hi @GerryO - I'm sorry to read about your health problems. As you probably know completing the BASRIS form is up to a clinician's judgement, so in a way it's good that they don't consider it's currently needed.
    '[you] can also ask for a second opinion from a relevant doctor or nurse who is able to sign the BASRiS form. The Charter of Patient Rights and Responsibilities required by the Patient Rights (Scotland) Act 2011 says, “You can ask for a second opinion before you make a decision about your care and treatment, if you think you need it. Where possible, your request will be met''


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  • Hannah_Scope
    Hannah_Scope Posts: 5,985 Disability Gamechanger
    Hello @GerryO

    Apologies as I didn't see your reply before I asked if you were well. I am so sorry to hear about your condition being terminal. I see Chiarieds has been able to advise on the BASRIS Form. I hope it helps answer your query. Can I ask, do you have support around you? 
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • GerryO
    GerryO Community member Posts: 4 Listener
    Hi Chiarieds, 
    This is a nightmare guidance.
    it has you thinking from the onset that if your condition is a progressive, Terminal, no cure and is the thing that is more likely to cause your death then the BASRIS form should be completed.
    My consultant has said my lungs are at 50% capacity and I have been put on steroids to try and slow the progression.
    He also stated there will be no improvement to my condition.
    I have asked if he could supply me with the sections he used on the guidance that supports his decision.
    I have not received anything from him after repeated requests.


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  • GerryO
    GerryO Community member Posts: 4 Listener
    Hello @Hannah_Scope
    I am sorry my condition was put so vividly but it was the only way I could explain my my side for BASRIS
    In answer to your first comment yes I am well thank you.
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  • Hannah_Scope
    Hannah_Scope Posts: 5,985 Disability Gamechanger
    Please don't apologise. It was me not seeing your post before I responded. I hope the community can be a place of support for you! <3

    Glad to hear you are well today, I hope the weather is nice where you are? :) 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    Is there anything that might help at the moment @GerryO? Other than your consultant providing you with the relevant sections, of course. You have every right to do a freedom of information request - have you contacted the main admin or escalated this to a complaint yet? Please don't hesitate to let us know if there is anything else we can do to help  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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