We want to hear from you: please tell us about your experience of the online community.
We CP folk use up a lot more energy than non-CP people, up to 5 times more because of the way we move or walk etc, this can lead to fatigue.
The key is learning about your body and planning your day around that as much as you can. Plan the bigger tasks at the time you have the most energy etc.
There is also something called Post-Impairment Syndrome that is related to CP this refers to additional conditions that might be acquired by someone already living with CP.
Here is an excellent blog post about it:
What Post-Impairment Syndrome Means to Me
What I would advise is that you book an appointment with your GP (telephone appointments will work too) and talk to them about how your CP has changed. And get a referral to a neurologist or neuro-physiotherapist. You can mention the CP Care Pathway which instructs G.P.s how and when to refer to UCLH Cerebral Palsy Service. You may also want to consider a referral to the Bobath Adult CP review service that was created with the support of Scope.
If you would like to talk more, drop me an email or find me in the community.
The value must be greater than or equal to 1.
Get more out of your online community by signing in or registering
