Pip refused — Scope | Disability forum
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Pip refused

varnish1
varnish1 Community member Posts: 1 Listener
Hi, I am new to the forum and was hoping If anyone could give me some advice please. I wanted to put a claim in for pip for several months but never did anyway I finally bit the bullet and put in a claim for pip in June this year. The application form alone made me really anxious and in the end my friend had to helped me complete it. After suffering with horrendous pain in my back for 10 years I ended up having disctectomy surgery on my back but because of the damage to my nerves in my spine and the pain i was still in and after many facet joint injections that didnt help i finally had surgery and got a nevro spinal implant fitted, it helped with the pain for a little while but the pain soon came back just as bad. Since this surgery I have just had to learn to live with the pain and as they say get on with it but since then my health as gone down hill. I developed plantar fibroma and planter facilitis on both my feet which makes walking very painful I have osteopenia , osteoarthritis ect and now over The last few years I have suffered terribly with stomach pain only to be given different  medications off my gp which never helped. The pain got that af I couldn't get out of bed, had constant diarrhoea, couldn't eat because of the pain a swollen tummy ect  and then a week in hospital anyway finally I was referred to a specialist and after multiple tests and scans I have been diagnosed with crohn's disease, colitis, ulcers, pancreatic insufficiency and narrowing of my small bowel. I worked in a full time job for many years which i loved but due to illness and so much time off work I had to find a part time job as I just couldn't manage working full time anymore so I managed to find a job which is only working 24hrs week. As I struggle day to day and have good and bad days with my crohns I decided to try to get help from pip. I sent off my application form and finally after waiting months I got a date to have a telephone assessment. The lady was lovely but when on the phone all I could hear is her puffing on an ecig while asking me questions and going through everything I had put down on my form and i think i got that overwhelmed and anxious i dont know why but I  ended up suddenly crying halfway through the assessment. The lady then seemed to be a little cold with me and said are you ok and then without even waiting for me to answer her or get myself together again continued with the questions but because I got myself upset my anxiety went through the roof and it took me a while to get my head straight again. Anyway when she asked me about me working part time she said o so you still go to work even though you say your in terrible pain which made me feel like a fraud and a liar. Anyway the assessment finally ended and she said It could take up to 12week for a decision. On friday which was only 4 days after the telephone assessment I received a letter refusing my pip claim. She had scored me 0 for every question with daily living, mobility ect. I am mortified I explained when I spoke to her that I have good and bad days and that the bad days are more than the good ones and because I still have to pay my bills there have been times when I have had to go to work in horrendous pain. I have no quality of life and my husband not only works full time but also cares for me ect which makes me feel so guilty but I just stay in bed in my pjs all the time because I am that depressed and still in pain as I am trying different medication from my specialist to try and get my crohns under some kind of control and only get dressed to go to work but My anxiety has been worse since I got the decision letter. I am so shocked that she scored me 0 for every question after everything I told her. Was she actually listening to me? What they heck.. I sent all my medical letters with my application, diagnosis letters ect so the proof was right there but i think she must have thought I was a liar or maybe a benefit cheat or something. Now I am so confused and I cant sleep because I am so shocked and upset with the 0 scores she gave me. Now i am unsure if I should bother to send a mandatory reconsideration notice or just forget it. Sorry about the brief medical history but would have took me to long to go into detail.  Please any advice would be so appreciated. Thank you in advance

Comments

  • TheManFromLondon
    TheManFromLondon Community member Posts: 107 Pioneering
    Hi @varnish1 Sorry to read you have had such a difficult time so far with your PIP application.

    May I ask, which descriptors you think you should score, to your opinion?

    My best friends has a very similar set of conditions and feels nothing applies to them, mainly because looking for the outside, their life is not affected (they still work, still do most things, they just tolerate pain).

    In terms of moving forward I think most people in the forum will suggest a Mandatory Reconsideration. I have seen endless post how to prepare for one, but I'm sure people will give you the basics here.
  • poppy123456
    poppy123456 Community member Posts: 52,406 Disability Gamechanger
    I found that very difficult to read without paragraphs. Please be aware that PIP isn't about a diagnosis. It's how those conditions affect you against the 12 PIP activities.

    Your first step is to request the Mandatory Reconsideration (MR) within 1 month of the date of the decision. You should put this in writing stating where and why you think you should have scored those points. Please do not ring to request this. 

    If you are unable to do this within the first month then you'll need to tell them why you didn't request it within that time. With good reason you have 13 months to request it. If they refuse you just proceed to Tribunal.

    If you didn't give a couple of real world examples of exactly what happened the last time you attempted each descriptor that applies to you then you should do that now. You should also include detailed information such as where you were, what exactly happened, did anyone see it and what the consequences were. Ideally you should aim for at least half an A4 side of paper per descriptor that applies to you.


    There's also a form here that you can download and print off https://www.gov.uk/government/publications/challenge-a-decision-made-by-the-department-for-work-and-pensions-dwp or you can just write a letter.






    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • poppy123456
    poppy123456 Community member Posts: 52,406 Disability Gamechanger
    Hi @varnish1 Sorry to read you have had such a difficult time so far with your PIP application.

    May I ask, which descriptors you think you should score, to your opinion?

    My best friends has a very similar set of conditions and feels nothing applies to them, mainly because looking for the outside, their life is not affected (they still work, still do most things, they just tolerate pain).

    In terms of moving forward I think most people in the forum will suggest a Mandatory Reconsideration. I have seen endless post how to prepare for one, but I'm sure people will give you the basics here.

    PIP isn't awarded based on any diagnosis. Comparing 2 people is impossible because we are all affected differently by these conditions. What may affect one person, may not affect another. Some may have grerat difficulties and others not so much.

    Send this link to your friend and ask them to have a read. https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria it may help them have a little more understanding about the descriptors.

    Speaking from my own health conditions, i can do a lot of things but this doesn't mean i can do them repeatedly, reliably, safely and in a reasonable time period. Most of us manage the best way we can and most things just come naturally to us and it's not until we sit down and think hard about things that we realise just how much we struggle.

    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • TheManFromLondon
    TheManFromLondon Community member Posts: 107 Pioneering
    @poppy123456 Agreed, I will rephrase.
  • TheManFromLondon
    TheManFromLondon Community member Posts: 107 Pioneering
    @varnish1

    Rephrasing as I got flamed by the mighty Poppy.

    So, reading your post, I feel your condition does not meet any descriptors. I feel you have not understood them well.

    Which descriptors you think your should score?
  • poppy123456
    poppy123456 Community member Posts: 52,406 Disability Gamechanger
    @TheManFromLondon I didn't flame you at all. I'm not "mighty" either and think your comment is actually quite rude.

    May i ask why you think that varnish1 doesn't meet any of the descriptors? It's not awarded based on any diagnosis. Since no one here knows exactly how their conditions affect them then how can we possibly advise that there's no entitlement?
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Community_Scope
    Community_Scope Posts: 887 Scope online community team

    Note from online community team:

    Hello everyone,

    We want this discussion to continue, but we’re concerned that things are becoming quite tense and could easily escalate.

    Please remember that all discussions on Scope’s online community should remain civil, supportive, and safe.

    We will continue to closely monitor this discussion, but if it escalates further, we may choose to pause, close, or even hide the discussion.

    For more information, please read our online community house rules.

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