Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.

Hello :)

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Crochet_Fairy9
Crochet_Fairy9 Community member Posts: 3 Listener
Hi All :) I'm currently waiting for a appointment to see a specialist to confirm suspected chronic fatigue syndrome. 
I work full time (from home) and I'm struggling at the moment to manage.
Some days I feel like I'm making it up and other days I try to get used to this new way of being.
I've had symptoms for over a year but other things have had to be ruled out first.
I have a meeting with occupational health through work next week so hopefully that will help.
I'm worried about losing my job - they've been supportive so far - but I feel like I'm unreliable which isn't helping my mental health. (I've struggled with depression for over 15 years)
Thanks for letting me ramble :)

Comments

  • Ada
    Ada Scope Member Posts: 16,227 Disability Gamechanger
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    Hello @Crochet_Fairy9 it’s a warm welcome from me. I am truly sorry your suffering and send you love. 
    I’ve lived with CFS for years. ( among other demons). I completely understand how difficult it makes life. There are still many folk who chose not to believe our suffering and that can be difficult in itself. Stay strong I also have mental illnesses. And the battle is daily. But you will find many friendships on here to give you strength. 
    God Bless. Sending hugs 🤗 
  • Rosie_Scope
    Rosie_Scope Posts: 2,928 Scope online community team
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    Hello @Crochet_Fairy9 :) welcome to the community!

    It's so difficult when your condition fluctuates a lot, I feel you on that one! Some days I feel like I'm making a lot of fuss about nothing, but it's all about the whole picture.

    It's good to read your work are being supportive so far. I hope the occupational health meeting is helpful! 

    What kind of things do you like to crochet? I have a neighbour that makes all sorts of amazing creations, but I've never given it a go myself.
    Rosie (she/her)

    Online Community Coordinator @ Scope

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  • Crochet_Fairy9
    Crochet_Fairy9 Community member Posts: 3 Listener
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    Ada said:
    Hello @Crochet_Fairy9 it’s a warm welcome from me. I am truly sorry your suffering and send you love. 
    I’ve lived with CFS for years. ( among other demons). I completely understand how difficult it makes life. There are still many folk who chose not to believe our suffering and that can be difficult in itself. Stay strong I also have mental illnesses. And the battle is daily. But you will find many friendships on here to give you strength. 
    God Bless. Sending hugs 🤗 
    Hi Ada,

    Thank you for your kind words. It is definitely an uphill battle trying to explain to my family what is going on but my husband is understanding which helps a lot. Hope you are ok - hugs back to you :)
  • Crochet_Fairy9
    Crochet_Fairy9 Community member Posts: 3 Listener
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    Hello @Crochet_Fairy9 :) welcome to the community!

    It's so difficult when your condition fluctuates a lot, I feel you on that one! Some days I feel like I'm making a lot of fuss about nothing, but it's all about the whole picture.

    It's good to read your work are being supportive so far. I hope the occupational health meeting is helpful! 

    What kind of things do you like to crochet? I have a neighbour that makes all sorts of amazing creations, but I've never given it a go myself.
    Hi Rosie,

    Thank you so much :) I have to remind myself that it is definitely a continuous situation and not based on a couple of days.

    I've been crocheting a lot of baby blankets for friends and I also make stuffed animals. I love anything that can made with colourful wool! What kind of things does your neighbour make?
  • Ada
    Ada Scope Member Posts: 16,227 Disability Gamechanger
    Options
    Hello @Crochet_Fairy9 :) welcome to the community!

    It's so difficult when your condition fluctuates a lot, I feel you on that one! Some days I feel like I'm making a lot of fuss about nothing, but it's all about the whole picture.

    It's good to read your work are being supportive so far. I hope the occupational health meeting is helpful! 

    What kind of things do you like to crochet? I have a neighbour that makes all sorts of amazing creations, but I've never given it a go myself.
    Hi Rosie,

    Thank you so much :) I have to remind myself that it is definitely a continuous situation and not based on a couple of days.

    I've been crocheting a lot of baby blankets for friends and I also make stuffed animals. I love anything that can made with colourful wool! What kind of things does your neighbour make?
    I use to knit daily for dog charities. Dog jumpers etc gave me something to do as well as some purpose since giving up work. but had to stop last year due to arthritis. Now I just stare at the walls listening to podcasts 
  • Rosie_Scope
    Rosie_Scope Posts: 2,928 Scope online community team
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    That sounds so sweet @Crochet_Fairy9! My neighbour makes clothes, blankets and other little bits and pieces. She makes loads of festival-style crop tops too, the ones that look almost like a butterfly. Not something I'd ever have the occasion or courage to wear but I can admire them from afar!

    Crochet always looks so intricate to me, I'm not sure I'd have the skill! I do have a coaster crochet kit somewhere, so perhaps I'll give that a go some day soon.

    @Ada sorry you're not able to do your doggy jumpers any more, but I'm sure you made a really big difference for them and they will have appreciated it so much. Podcasts are a nice way to waste time, too.
    Rosie (she/her)

    Online Community Coordinator @ Scope

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