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Scoliosis Pain

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Bettahm
Bettahm Community member Posts: 1,446 Disability Gamechanger
So I've woken up this morning with pain in the base of my skull, congested sinuses, vertigo and a spreading headache 
I get scoliosis pain
It is not always in the same place, just body pain, sometimes tingling in my lower legs, all kinds of stuff.
I have a s curved spine, twisted neck, ribcage and pelvis.

How do I cope with all this

Gp did a referral to pain management clinic on sep 12 after my transforming care lady asked them repeatedly to do it and I complained to pals.
Not heard anything.

I can no longer contact or go to gp because of my mental health and the bad treatment I've had from them previously 

Anyone else here have scoliosis 

What should I do
With this and my mental health I've had enough. 

Comments

  • Jimm_Scope
    Jimm_Scope Posts: 3,610 Disability Gamechanger
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    Hi @Bettahm, I'm so sorry to hear you've been struggling and asking for help but nothing has happened. 

    Your GP is quite vital to getting you treatment, is there another surgery available to you at all or a specific doctor you've had good interactions with at the current surgery? 

    If there's not another one you fall within the catchment area for there are still ways to apply for GPs outside their regular catchment area Registering with a GP surgery outside your local area - NHS (www.nhs.uk).

    Do you know which clinic you were referred to specifically? Sometimes they have a phone number or email you can contact them on to get information on when you are likely to hear from them.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
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    Hi @Bettahm, I'm so sorry to hear you've been struggling and asking for help but nothing has happened. 

    Your GP is quite vital to getting you treatment, is there another surgery available to you at all or a specific doctor you've had good interactions with at the current surgery? 

    If there's not another one you fall within the catchment area for there are still ways to apply for GPs outside their regular catchment area Registering with a GP surgery outside your local area - NHS (www.nhs.uk).

    Do you know which clinic you were referred to specifically? Sometimes they have a phone number or email you can contact them on to get information on when you are likely to hear from them.
    Theres a problem that I cant go through the process of getting an appt with gp and asking transforming care to tell them to make reasonable adjustments but they dont do it. They are unbelievably bad.
    I didnt know you could apply for a gp outside your area and will look at that.
    Thanks.
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    Hi @Bettahm, I'm so sorry to hear you've been struggling and asking for help but nothing has happened. 

    Your GP is quite vital to getting you treatment, is there another surgery available to you at all or a specific doctor you've had good interactions with at the current surgery? 

    If there's not another one you fall within the catchment area for there are still ways to apply for GPs outside their regular catchment area Registering with a GP surgery outside your local area - NHS (www.nhs.uk).

    Do you know which clinic you were referred to specifically? Sometimes they have a phone number or email you can contact them on to get information on when you are likely to hear from them.
    I'll try and get transforming care to help me register with the gp at the local community hospital. They have good reviews. Not very local, around 15 miles from me but might be worth it. Could give a long list of failures and bad treatment from current gp over last few years. 
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
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    @Jimm_Scope
    And now I've filled in a general enquiry form to the pain management clinic at the main county hospital to see how long the wait just to hear back from them is. Would like to know I'm on the waiting list at my local community hospital. 
    Thanks for your help.
    Be good to move to a new gp 
  • Jimm_Scope
    Jimm_Scope Posts: 3,610 Disability Gamechanger
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    I really do hope you can change your GP. They are just so vital to getting proper care under the NHS and it's so frustrating when people (including myself in the past) are let down by badly run GP surgeries.

    Let us know how you get on.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
    Want to give us feedback? Complete our feedback form now.
    Opinions are my own, such as mashed potato being bad.
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    I really do hope you can change your GP. They are just so vital to getting proper care under the NHS and it's so frustrating when people (including myself in the past) are let down by badly run GP surgeries.

    Let us know how 
  • Bettahm
    Bettahm Community member Posts: 1,446 Disability Gamechanger
    Options
    Bettahm said:
    I really do hope you can change your GP. They are just so vital to getting proper care under the NHS and it's so frustrating when people (including myself in the past) are let down by badly run GP surgeries.

    Let us know how 
    Ok I will do. I really hope I can and it goes well and they understand my mh issues. Unlike current lot.
    Thank you 
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