Hi, my name is AvocadoNo5

AvocadoNo5

Hi everyone 👋🏼
 I’m so glad I came across this forum - I’ve been looking for a place to talk to others in maybe similar situations to me regarding disability. I can’t work but try and have as active a life as possible. It’s hard to talk to my family and friends about my health - no one really gets it unless you’ve been there. Looking forward to chatting to you all. 

H xxx 

Hannah_Alumni

Hello @AvocadoNo5

Welcome to the community! Glad to have you with us! You keeping well? 

Albus_Scope

And a big welcome from me too!



*Wanders off humming Mambo No5*

AvocadoNo5

@Albus_Scope 👏 that’s where it came from many years ago - plus the amount of avocados you need to squeeze to find a ripe one! 

Albus_Scope

Haha @AvocadoNo5, I love a good pun name.  Well done.  

AvocadoNo5

@Hannah_Scope thanks for the welcome
I’m  having a rare good day today - never sure what the morning will bring. Hope you are keeping well too?
 Do people tend to post their disabilities in their signatures or bios? I have psoriatic arthritis, osteoarthritis and syringomyelia - I’d love to chat to others in a similar situation. 

Albus_Scope

I'm glad you're having a good day, it's always good to take advantage of them when they happen.
And I'm doing good thank you, looking forward to a weekend off to spend time with the dogs.

It's totally up to you if you wanted to add your disabilities to your bio or not, I like the idea tbh.  But we have plenty of great categories to share your stories and speak to likeminded people.  The Coffee Lounge is great if you just want to have a chat or play some games. 

chiarieds

Hi @AvocadoNo5 - & welcome from me also. I find it interesting when members say a little about the disabilities they have, so thank you. Now I can say in reply that I also have OA, & have a good understanding about syringomyelia, as I've read quite a lot about it. The reason being that my family is affected by Chiari 1 Malformation, which is often the cause of syringomyelia. In our case we have Chiari1 Malformation as it can be associated with Ehlers-Danlos Syndrome (we have the type where we have hypermobile joints).

AvocadoNo5

@chiarieds great you’ve heard of syringomyelia - I’d never heard of it until I was diagnosed. Sadly mine is affecting my thoracic spine and is of unknown origin. So just a case of monitoring symptoms until they are at a point surgery might be an option. It’sa very painful condition - that must be difficult in your family? 

AvocadoNo5

Thank you @Albus_Scope I’ll check the coffee lounge out 👍🏼

chiarieds

Hi @AvocadoNo5 - unfortunately I know more about syringomyelia (& Chiari 1 Malformation) then I ever wanted to know! My son has a small cervical syrinx, which thankfully hasn't changed, but even in one family we're all different. I do have chronic daily pain, which is of a constant burning nature, & medication only helps to dampen it down a little, so you have my sympathy. I find it far worse than my joint pain.

AvocadoNo5

@chiarieds yes the burning pain is something else! Much worse than my joint pain too (and I’ve been told I need a knee replacement!). My tens machine is a great help 

chiarieds

I'm pleased your Tens machine is helping so much, tho sorry to read you might need a knee replacement. However, one of my neighours had this done last year, &, altho it took time (& doing her physio exercises regularly at home; I checked as I used to be a physio!) she's doing great now, & importantly, pain free.

About syringomyelia, should you wish to know more, this is the best site I've found about both this & Chiari 1 Malformation: https://asap.org/  If you look under 'Conference 2024,' then 'Past Conferences,' there are many videos which are for patients.

Anyway, very nice to both 'meet' you, & chat to you, & stay in touch, just whenever you'd like 

Jimm_Scope

I finally have an answer to the question "I wonder where chiarieds got their name from". Very interesting!

My partner has EDS so I'll need to look into this, I know she doesn't have Chiari 1 at the moment, doesn't hurt to read up about it.

AvocadoNo5

@chiarieds thank you for the information - I’ll definitely be checking that out. And great to meet you too 😁