People who are suppose to be helping me with my mental health are making me feel worse

Bettahm

Transforming care have emailed this morning saying they feel I need social care. This has been going on sometime and I will not consent to it for several reasons like one, I dont need it, I need help with my mental health! Not left with it and have 'care'. It is making my mh worse all the time. I have depression, bad anxiety and agoraphobia and all this bullying is making me just want to stay shut away and shut the world out. I have told them I need to have regular sessions with a psychologist to beat this. They have referred me today to IPBT but they work with CBT which doesn't work for me because I'm autistic. I'm starting to despair of ever getting help or getting better.
I've been written off by the system and left with 'care'. That's not going to improve my mental health. 

Rosie_Scope

I'm really sorry this is happening to you @Bettahm, it sounds really difficult.

Have you managed to email them back to explain how you feel about their suggestions? I'd understand if you don't feel up to it yet.

letitbe

Bettahm said:

Transforming care have emailed this morning saying they feel I need social care. This has been going on sometime and I will not consent to it for several reasons like one, I dont need it, I need help with my mental health! Not left with it and have 'care'. It is making my mh worse all the time. I have depression, bad anxiety and agoraphobia and all this bullying is making me just want to stay shut away and shut the world out. I have told them I need to have regular sessions with a psychologist to beat this. They have referred me today to IPBT but they work with CBT which doesn't work for me because I'm autistic. I'm starting to despair of ever getting help or getting better.
I've been written off by the system and left with 'care'. That's not going to improve my mental health. 

When you were under CMHT did they offer and therapy ( not CBT ) ? 

Bettahm

letitbe said:

Bettahm said:

Transforming care have emailed this morning saying they feel I need social care. This has been going on sometime and I will not consent to it for several reasons like one, I dont need it, I need help with my mental health! Not left with it and have 'care'. It is making my mh worse all the time. I have depression, bad anxiety and agoraphobia and all this bullying is making me just want to stay shut away and shut the world out. I have told them I need to have regular sessions with a psychologist to beat this. They have referred me today to IPBT but they work with CBT which doesn't work for me because I'm autistic. I'm starting to despair of ever getting help or getting better.
I've been written off by the system and left with 'care'. That's not going to improve my mental health. 

When you were under CMHT did they offer and therapy ( not CBT ) ? 

No, no therapy offered.
Just pills and I dont do pills. Cbt doesnt work for me either. The support worker had no understanding of my conditions and was trying to push me to doing things I cant do saying 'what you're suffering from is fear and you just have to do it'. A CBT approach. When I wouldn't do stuff they wanted to get social care in and I refused.
Yes I want help but their approach is shove you in off the deep end.
They made me worse. 

Bettahm

Rosie_Scope said:

I'm really sorry this is happening to you @Bettahm, it sounds really difficult.

Have you managed to email them back to explain how you feel about their suggestions? I'd understand if you don't feel up to it yet.

I have emailed them back, in anger.
'Stuff your social care'
I know, but sometimes you have to let them really know what they're doing to you.
All this has gone on too long while my conditions worsen.

Bettahm

@letitbe
I read online an article that appeared in the guardian several years back now saying if you dont respond to treatment they can just kick you out.
No referral on to another service, nothing.
Leave you with your mental health problems. 

Its getting like the Victorian era. 

Rosie_Scope

It's not good at all, @bettahm. Accessing treatment can be so taxing and I'm really sorry you're not getting what you need or being listened to properly. 

Have you ever used an advocacy service? They can help you to communicate your wishes to organisations who you feel aren't listening properly. I'll link an example below. It's a bit dependent on the area you live in, but might be worth looking into to see if they can help you. 

In your area | POhWER

letitbe

Bettahm said:

letitbe said:

Bettahm said:

Transforming care have emailed this morning saying they feel I need social care. This has been going on sometime and I will not consent to it for several reasons like one, I dont need it, I need help with my mental health! Not left with it and have 'care'. It is making my mh worse all the time. I have depression, bad anxiety and agoraphobia and all this bullying is making me just want to stay shut away and shut the world out. I have told them I need to have regular sessions with a psychologist to beat this. They have referred me today to IPBT but they work with CBT which doesn't work for me because I'm autistic. I'm starting to despair of ever getting help or getting better.
I've been written off by the system and left with 'care'. That's not going to improve my mental health. 

When you were under CMHT did they offer and therapy ( not CBT ) ? 

No, no therapy offered.
Just pills and I dont do pills. Cbt doesnt work for me either. The support worker had no understanding of my conditions and was trying to push me to doing things I cant do saying 'what you're suffering from is fear and you just have to do it'. A CBT approach. When I wouldn't do stuff they wanted to get social care in and I refused.
Yes I want help but their approach is shove you in off the deep end.
They made me worse. 

Saying “fear and you just have to do it” shows a massive lack of understanding with MH issues, just as bad as “pull yourself together “ 
it’s getting to the root of the issues that can help . 

Bettahm

Rosie_Scope said:

It's not good at all, @bettahm. Accessing treatment can be so taxing and I'm really sorry you're not getting what you need or being listened to properly. 

Have you ever used an advocacy service? They can help you to communicate your wishes to organisations who you feel aren't listening properly. I'll link an example below. It's a bit dependent on the area you live in, but might be worth looking into to see if they can help you. 

In your area | POhWER

Pohwer are not in this area. I have emailed voiceability but that's ongoing. First they said I had to be with cmht! Or social care! Hoping if I get the referral to IPBT that might work for an advocate. IPBT only do CBT tho and that doesnt work for me. 

It is not right you have to fight to get help when you're already struggling with the world. 

Bettahm

letitbe said:

Bettahm said:

letitbe said:

Bettahm said:

Transforming care have emailed this morning saying they feel I need social care. This has been going on sometime and I will not consent to it for several reasons like one, I dont need it, I need help with my mental health! Not left with it and have 'care'. It is making my mh worse all the time. I have depression, bad anxiety and agoraphobia and all this bullying is making me just want to stay shut away and shut the world out. I have told them I need to have regular sessions with a psychologist to beat this. They have referred me today to IPBT but they work with CBT which doesn't work for me because I'm autistic. I'm starting to despair of ever getting help or getting better.
I've been written off by the system and left with 'care'. That's not going to improve my mental health. 

When you were under CMHT did they offer and therapy ( not CBT ) ? 

No, no therapy offered.
Just pills and I dont do pills. Cbt doesnt work for me either. The support worker had no understanding of my conditions and was trying to push me to doing things I cant do saying 'what you're suffering from is fear and you just have to do it'. A CBT approach. When I wouldn't do stuff they wanted to get social care in and I refused.
Yes I want help but their approach is shove you in off the deep end.
They made me worse. 

Saying “fear and you just have to do it” shows a massive lack of understanding with MH issues, just as bad as “pull yourself together “ 
it’s getting to the root of the issues that can help . 

Absolutely!!
This is why I have been pushing for sessions with a psychologist. But steps 2 change wont have me back (after 18 months of their CBT, on and off, didnt work) and cmht for some reason wouldn't let me talk with theirs.
My mind needs fixing. I do not want to be left like this with 'social care'. 
We live in a pretty toxic society now.

Rosie_Scope

That's really frustrating, @Bettahm. It's horrible how much of a struggle it is just to access the help you need, especially when you're fairly certain you know what you'd find helpful. 

Perhaps the IPBT referral might be the first step to at least getting access to an advocate who can fight for you, even though the CBT might not be useful. Not fun to have to jump through hoops to get the care you deserve, though. 

Bettahm

Rosie_Scope said:

That's really frustrating, @Bettahm. It's horrible how much of a struggle it is just to access the help you need, especially when you're fairly certain you know what you'd find helpful. 

Perhaps the IPBT referral might be the first step to at least getting access to an advocate who can fight for you, even though the CBT might not be useful. Not fun to have to jump through hoops to get the care you deserve, though. 

I am getting tired and angry. Five years in the system and I'm worse with no happy ending in sight.
It'll be the same for many on this forum and its sick.
Before hunt and stride start imposing sanctions on us they want to fix our sick, Victorian mental health care system!

Rosie_Scope

That's really understandable @Bettahm, I'm not surprised you're angry and you have every right to be. The system is broken and I'm really sorry things are so difficult for you.

I hope the community is somewhere you feel able to vent about it all when you need to. I'll have a think and see if I can come up with anything else that might be helpful to you.

Bettahm

Rosie_Scope said:

That's really understandable @Bettahm, I'm not surprised you're angry and you have every right to be. The system is broken and I'm really sorry things are so difficult for you.

I hope the community is somewhere you feel able to vent about it all when you need to. I'll have a think and see if I can come up with anything else that might be helpful to you.

Thank you Rosie