My dads getting closer to the paralysed stage of MND, his right arm (the last remaining part he can move) is weakening rapidly.
Has anyone got any advice/experience with things we can get to support him drinking?
I've just ordered him the hydrate system on amazon to try but obviously thats mostly just good for his juices/waters. I'm guessing we're going to need a straw and someone to hold up his smaller nutrition drinks for him. We've kinda been left alone to figure this one out as none of his team have seemed worried that this was the eventuality.
Feeding wise I'm guessing thats going to be one of us feeding him until he gets given his feeding tube. As far as I'm aware he's now on the list for that procedure.
One other thing is his stairlift seat feels kinda wide to him, and he has a tendancy to lean to the sides/forward in it. Has anyone bought (or made) a strap to go over the stairlift seat/users chest just to hold them upright and to it a bit better? As I'm considering doing that because at the moment we have one person going up and down right next to him supporting him to the seat but he still manages to lean and feel not secure.
I'm trying my hardest to stay ahead of the game with this decline as best as I can but does anyone have any experience with these issues or can think of future things I haven't thought about?
He already has his hoists in place, stairlift, commodes etc as well as a catheter.
