Hi, my name is Stav! I have just been diagnosed with Dercum's disease

Stav
Stav Online Community Member Posts: 3 Listener
edited December 2023 in Rare, invisible, and undiagnosed conditions
Hi,
I have just been diagnosed with Dercum's disease after having an ultrasound and examination by a dermatologist in hospital.  I have pain in all my joints along with fatigue, any advice would be most helpful. 

Comments

  • bg844
    bg844 Online Community Member Posts: 3,889 Championing
    Unfortunately, the Scope Community aren't medical professionals and it is against the rules to give conditions-based advice. I feel the best place for you to start would be to contact your GP.
  • Stav
    Stav Online Community Member Posts: 3 Listener
    Thank you for your reply,I have spoke to my Gp who told me dercum's disease is quite common and not to worry.
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @Stav

    I'm so sorry to hear you have been in pain. I do hope the GP can help! Have you got a specialist consultant now you have a diagnosis? I would encourage you to reach out to them for more support too <3 
  • Stav
    Stav Online Community Member Posts: 3 Listener
    Hi Hannah,
    I haven't got a specialist consultant yet,that's something for me to look into . Thanks you
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    I hope you get one sorted soon! :) 

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