Hi, my name is Loisanne! — Scope | Disability forum
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Hi, my name is Loisanne!

Loisanne
Loisanne Community member Posts: 4 Listener
I’ve just been diagnosed with Myasthenia Gravis and quite honestly I’m floored. Very unsure of what is in store and very frightened.

Comments

  • Rosabelle
    Rosabelle Community member Posts: 41 Courageous
    hello Loisanne, am very new here myself but wanted to reach out and send you a hug. Have been finding this a very supportive and kind place and hope you do too. I dont know about your diagnosis (I have problems with fatigue, chronic headaches and long term anxiety issues and am unable to work at present) but I am sure you are not alone with it. Do you have a support plan yet? Sending kind thoughts x
  • Loisanne
    Loisanne Community member Posts: 4 Listener
    Thankyou for introducing yourself. I don’t have a support plan yet. See the neurologist tomorrow for the first time so hopefully I will get more information.
  • Jimm_Scope
    Jimm_Scope Posts: 2,670 Scope online community team
    Hi @Loisanne, welcome to the online community. Sorry to hear about your diagnosis. I remember when I was first diagnosed with Crohn's disease, a different autoimmune disease. I was 19 and still had that 'invincible' feeling you have when you're a teen. But illness went from a temporary thing to something permanent at that point. Took a long time for me to grasp that and accept it, but I'm in a much better place now than I was then.

    I hope your meeting with the neurologist goes well, from what I have read once you find the right treatment things get much better. It took me sometime to find the right treatment for my Crohn's disease, but the NHS was pretty good at getting me sorted.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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