Hi, my name is Loisanne!

Loisanne
Loisanne Online Community Member Posts: 4 Listener
in Start here and say hello!
I’ve just been diagnosed with Myasthenia Gravis and quite honestly I’m floored. Very unsure of what is in store and very frightened.

Comments

  • Rosabelle
    Rosabelle Online Community Member Posts: 40 Contributor
    hello Loisanne, am very new here myself but wanted to reach out and send you a hug. Have been finding this a very supportive and kind place and hope you do too. I dont know about your diagnosis (I have problems with fatigue, chronic headaches and long term anxiety issues and am unable to work at present) but I am sure you are not alone with it. Do you have a support plan yet? Sending kind thoughts x
  • Loisanne
    Loisanne Online Community Member Posts: 4 Listener
    Thankyou for introducing yourself. I don’t have a support plan yet. See the neurologist tomorrow for the first time so hopefully I will get more information.
  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing
    Hi @Loisanne, welcome to the online community. Sorry to hear about your diagnosis. I remember when I was first diagnosed with Crohn's disease, a different autoimmune disease. I was 19 and still had that 'invincible' feeling you have when you're a teen. But illness went from a temporary thing to something permanent at that point. Took a long time for me to grasp that and accept it, but I'm in a much better place now than I was then.

    I hope your meeting with the neurologist goes well, from what I have read once you find the right treatment things get much better. It took me sometime to find the right treatment for my Crohn's disease, but the NHS was pretty good at getting me sorted.

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