Autistic Burnout — Scope | Disability forum
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Autistic Burnout

Bettahm
Bettahm Community member Posts: 1,439 Disability Gamechanger
I've been trying to find out what's wrong with me as mental health professionals dont seem to be able to.
I think I have chronic autistic burnout, among maybe other things, but the burnout thing really seems to fit what I'm experiencing. 
Have done an online quiz, and know they are not to be used as diagnostic, but it confirmed my thoughts on this. 
Have emailed transforming care so they can check it out and add to the cmht psychology referral. 

Anyone else here in burnout, or have experienced it?

Comments

  • Jimm_Scope
    Jimm_Scope Posts: 2,301 Scope online community team
    I don't have autism but I've certainly had burnout before related to my ADHD. I have hyperfocused on a single thing so much and for so long to the detriment of my physical/mental health and then also the detriment of the thing/subject. 

    While the tests certainly shouldn't be taken at their face value they can sometimes point towards certain issues that professionals can then actually assess.

    I hope the professionals can consider it, and help if it is a concern. 
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • Bettahm
    Bettahm Community member Posts: 1,439 Disability Gamechanger
    I don't have autism but I've certainly had burnout before related to my ADHD. I have hyperfocused on a single thing so much and for so long to the detriment of my physical/mental health and then also the detriment of the thing/subject. 

    While the tests certainly shouldn't be taken at their face value they can sometimes point towards certain issues that professionals can then actually assess.

    I hope the professionals can consider it, and help if it is a concern. 
    I suspect its chronic burnout from years of going undiagnosed and that causing multiple problems in life.
    So now I have just shut myself away, dont speak to or see anyone and dont want to either. Like I've had enough. 
    So like its manifesting as depression, bad anxiety and agoraphobia but if it is these things, they are caused by burnout.
    It fits, when nothing else seems to.
  • Albus_Scope
    Albus_Scope Posts: 2,883 Scope online community team
    I had a major case of burnout after my old job forced me into a totally new role, surrounded by people.  I was physically and mentally broken for a long long time, as I had no idea I was autistic and what I needed to do to get myself back on an even keel.  It really creeps up on you, especially if you have no idea you're on the spectrum. 
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    Neurodivergent.
  • Bettahm
    Bettahm Community member Posts: 1,439 Disability Gamechanger
    I had a major case of burnout after my old job forced me into a totally new role, surrounded by people.  I was physically and mentally broken for a long long time, as I had no idea I was autistic and what I needed to do to get myself back on an even keel.  It really creeps up on you, especially if you have no idea you're on the spectrum. 
    What you have said here just about confirms it for me. Trying to cope in a hostile 'alien' world not knowing you're on the spectrum. Ok I'm diagnosed now but stuff has been piling up on me I guess and still continues to. Even today email from mps office re my cmht discharge. Cmht told his office they had emailed me about this and I had not responded, therefore PALS were closing the enquiry. 
    They have not emailed me.
    I've had enough of everything, pretty sure its burnout. 
  • Albus_Scope
    Albus_Scope Posts: 2,883 Scope online community team
    The key thing now is you have that diagnosis, so you can start working out what works for you when it comes to relieving that stress.  So working out what stims work best for you, what things you need to avoid and what helps you recharge. 
         I'm very much a hermit, but I've found occasional chats with friends, either on the phone or face to face have actually helped.  As long as they were quick, or it gets exhausting.  :D   It's very much a game of balance, but sometimes speaking about things helps the autistic brain process the information quicker. 

     I know it's probably a silly question, but have you checked the junk/spam folder for any emails that may have been missed? I'm so sorry it's been dragging on for you though @Bettahm I'm hoping a reply to your MP might help things?  
    Albus (he/him)

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  • Bettahm
    Bettahm Community member Posts: 1,439 Disability Gamechanger
    The key thing now is you have that diagnosis, so you can start working out what works for you when it comes to relieving that stress.  So working out what stims work best for you, what things you need to avoid and what helps you recharge. 
         I'm very much a hermit, but I've found occasional chats with friends, either on the phone or face to face have actually helped.  As long as they were quick, or it gets exhausting.  :D   It's very much a game of balance, but sometimes speaking about things helps the autistic brain process the information quicker. 

     I know it's probably a silly question, but have you checked the junk/spam folder for any emails that may have been missed? I'm so sorry it's been dragging on for you though @Bettahm I'm hoping a reply to your MP might help things?  
    Yes I'm a hermit. I think being around my pets, my dogs and fish, is the best thing. But the outside world keeps intruding and think I'm trying harder than ever to shut it out. One good and understanding friend would probably be good but I dont have any. Still hope to get an advocate if cmht will take me back for psychology and maybe both those things will help.
    No, definitely no emails from cmht. I did email back the mps office but whether they will continue pursuing it I dont know. 
    I've also emailed the cmht direct and said I want a copy of that discharge letter. Sent off in anger, but that's me.
  • Autism_at_40
    Autism_at_40 Community member Posts: 723 Pioneering
    I was in Autistic Burnout last year, I don't feel like I've truly recovered from it yet either...
    I literally couldn't function, I struggled to communicate, spent a lot of time in bed, simple things like going to the shops completely drained me.

    I learnt that some people never truly recover from burnout and aren't able to do the things they used to do before.  I feel like i'm like that to a certain extent.  I struggle to be around people, even short encounters send me into shutdown for sometimes days.

    I think that if you're diagnosed later in life, it just makes things so much harder.  I was only diagnosed 2 years ago.  So years of masking takes its toll, believe me, I know.

    The problem is that I don't think people understand burnout.  They just assume you're lazy or something.

    I lost all my friends when I got my diagnosis, so I completely understand the feeling alone and just wanting to shut yourself away.

    I now have an advocate that helped me get a care assessment and a support worker starting next year.  Hopefully, with the help to do every day things, I will be able to move forward.

    I don't know where you live, but where I just moved to there is a neurodivergent charity and they put on courses to learn more about your diagnosis, might be worth seeing if there is anything like that where you are.  It has helped me to understand, as a lot of things I have been through/do are Autism related and I just didn't know.
  • Ada
    Ada Scope Member Posts: 11,204 Disability Gamechanger
    I have Asperger. 
    I had a lot to say. But then deleted it all. 

  • Autism_at_40
    Autism_at_40 Community member Posts: 723 Pioneering
    I was told they don't use the term Asperger's anymore, but that's what I would be if they did.
    Why did you delete it all?  I'm sure we would all be interested in what you have to say :smile:
  • Adrian_Scope
    Adrian_Scope Testing team Posts: 10,599 Scope online community team
    I agree with @Autism_at_40, @Ada we're always interested in what you have to say, so long as you feel comfortable sharing. :) 
    Community Manager
    Scope
  • Bettahm
    Bettahm Community member Posts: 1,439 Disability Gamechanger
    I was in Autistic Burnout last year, I don't feel like I've truly recovered from it yet either...
    I literally couldn't function, I struggled to communicate, spent a lot of time in bed, simple things like going to the shops completely drained me.

    I learnt that some people never truly recover from burnout and aren't able to do the things they used to do before.  I feel like i'm like that to a certain extent.  I struggle to be around people, even short encounters send me into shutdown for sometimes days.

    I think that if you're diagnosed later in life, it just makes things so much harder.  I was only diagnosed 2 years ago.  So years of masking takes its toll, believe me, I know.

    The problem is that I don't think people understand burnout.  They just assume you're lazy or something.

    I lost all my friends when I got my diagnosis, so I completely understand the feeling alone and just wanting to shut yourself away.

    I now have an advocate that helped me get a care assessment and a support worker starting next year.  Hopefully, with the help to do every day things, I will be able to move forward.

    I don't know where you live, but where I just moved to there is a neurodivergent charity and they put on courses to learn more about your diagnosis, might be worth seeing if there is anything like that where you are.  It has helped me to understand, as a lot of things I have been through/do are Autism related and I just didn't know.
    Theres no support in this area for autistic adults. Now I have a number of mental health issues, I think as you said, all autism related. My diagnosis placed me in level 2 on some issues. I've never been able to hold down a job and always totally uncomfortable around people. Cmht have kicked me out tho transforming care want to get me back with them. Tbh I no longer trust them and dont see how it could work.
    Where did you get your advocate? I have been trying but been told I need to be with cmht before I can have one!! I cant go out but need medical appts so need an advocate to make the appts and come with me to them.
  • bookrabbit
    bookrabbit Community member Posts: 68 Pioneering
    I was in autistic burnout for years and years. I always pushed myself too hard and went to extremes trying to do everything perfectly...
    Maybe my enforced slow down from losing my mobility will allow me to recover at last??
    I just need to get through the next couple of months and into a new home and see what life still has to offer me...


  • Autism_at_40
    Autism_at_40 Community member Posts: 723 Pioneering
    edited January 17
    Bettahm said:

    Theres no support in this area for autistic adults. Now I have a number of mental health issues, I think as you said, all autism related. My diagnosis placed me in level 2 on some issues. I've never been able to hold down a job and always totally uncomfortable around people. Cmht have kicked me out tho transforming care want to get me back with them. Tbh I no longer trust them and dont see how it could work.
    Where did you get your advocate? I have been trying but been told I need to be with cmht before I can have one!! I cant go out but need medical appts so need an advocate to make the appts and come with me to them.
    Sorry, I've only just seen this..
    I got my advocate from a referral from the council, these people:

    Assessment & Reviewing CoordinatorG

    ASC First Contact

    Adult Care, Housing and Public Health


  • OnlyAlex
    OnlyAlex Scope Member Posts: 81 Pioneering
    edited January 24
    Hi everyone, hope you don’t mind me commenting. I had an Autistic meltdown a few weeks ago and lost the ability to speak and do anything by myself for days which was rather scary as I’m normally very independent.

    I’m currently staying at my parent’s house. My speech is pretty much better, but I am still too scared to go out and need prompting to carry out any task.

    I’m feeling rather lonely and anxious as I’ve never experienced this before.
  • Albus_Scope
    Albus_Scope Posts: 2,883 Scope online community team
    Hey @OnlyAlex, thanks for sharing and to everyone else who's shared their story.

      I'm glad there's been some progress after your meltdown, but I totally understand the anxiety and feeling of loneliness that can accompany it. It's not easy, but please be gentle with yourself.  You've even said yourself you've made progress, so that's amazing!  Plus we're all here to support you if you need it. :)

    Heck, I'm always up for talking about computer games. ;) 
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
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    Opinions expressed are solely my own.
    Neurodivergent.
  • OnlyAlex
    OnlyAlex Scope Member Posts: 81 Pioneering
    Hey @OnlyAlex, thanks for sharing and to everyone else who's shared their story.

      I'm glad there's been some progress after your meltdown, but I totally understand the anxiety and feeling of loneliness that can accompany it. It's not easy, but please be gentle with yourself.  You've even said yourself you've made progress, so that's amazing!  Plus we're all here to support you if you need it. :)

    Heck, I'm always up for talking about computer games. ;) 
    Thank you so much, that’s very kind of you. How’s your day going?

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