Apert Syndrome support needed. Who do I speak to?

hayderhayder815
Online Community Member Posts: 1 Listener
Hello, My daughter suffers from Apert Syndrome and she is only 3 years old, and we are from Iraq Baghdad, and it is impossible to cure her in my country due to the lack of health services. Could you advise me to whom I have to apply or what country or charity accepts her to be cured?
0
Comments
-
Hey there @hayderhayder815 and welcome to the community.
I'm sorry to hear you're unable to get support locally. As we're a UK based charity, I can only advise on UK help. But I've found Elija's hope who work with The Genetic Alliance who may be able to point you in the right direction?0
Categories
- All Categories
- 15.1K Start here and say hello!
- 7.1K Coffee lounge
- 84 Games den
- 1.7K People power
- 113 Announcements and information
- 23.9K Talk about life
- 5.6K Everyday life
- 345 Current affairs
- 2.4K Families and carers
- 863 Education and skills
- 1.9K Work
- 510 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 875 Relationships
- 254 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 859 Rare, invisible, and undiagnosed conditions
- 919 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 38.8K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.4K PIP, DLA, ADP and AA
- 8K Universal Credit (UC)
- 5.6K Benefits and income