Autism post Diagnostic assessments as basic legal requirement for adults with autism

IrishManc

Having been diagnosed with autism later in life in 2021, I have found a shocking lack of post diagnostic support for autistic adults and where the post-diagnostic assessment is the datum, the benchmark needed for identifying the required post diagnostic autism supports needed on a case-by-case basis - what I have encountered is a litany of lame excuses as to why this is not the case, usually centering around funding issues, knowing that whether or not public or private, requiring GP referral for even private supports, most people and their carers cannot turn to the courts to get their rights, where all the support is geared towards children - it’s now time that when a diagnosis of autism is made, a legal requirement to carry out post-diagnostic assessments is carried out in all cases, because people are being prevented from moving on with their lives, forced to muddle through regardless of level of autism and no-one is actively taking responsibility, legal, social, ethical or otherwise morally for this and for providing these assessments in the case of autistic adults - just like in every other area, mental health and disability is the poor relation when it comes to funding, mental health issues and mental disabilities are not taken seriously in a supposedly caring and civilised society, which is yet another example of hypocrisy of those in power and they need to be held accountable for this 

tomryan

I'm sorry to hear about the challenges you've faced and the lack of post-diagnostic support for autistic adults. It's a crucial issue that highlights the need for comprehensive care and assistance beyond the initial diagnosis. Here are a few potential steps and considerations:

1. Advocacy: Consider joining or reaching out to autism advocacy groups or organizations. They often work towards improving support systems, raising awareness, and influencing policy changes. Strength often lies in numbers, and collective advocacy can bring about change.

2. Local Autism Networks: Explore local autism networks, communities, or support groups. Connecting with others who have gone through similar experiences can provide valuable insights, resources, and emotional support. They might be able to share strategies for accessing post-diagnostic support.

3. Engage with Healthcare Providers: Communicate your concerns with your healthcare providers, including your GP. They may have information about available services, and expressing the need for improved post-diagnostic support could contribute to raising awareness within the healthcare system.

4. Write to Authorities: Consider writing letters or emails to relevant authorities, such as local health boards, mental health organizations, or even your local representatives. Clearly articulate the need for better post-diagnostic support for autistic adults, emphasizing the impact it has on individuals and their families.

5. Legal Support: Explore if there are legal avenues for advocating your rights or petitioning for improvements in post-diagnostic support. Legal aid services or disability rights organizations might be able to provide guidance.

6. Raise Awareness: Use your voice to raise awareness about the lack of post-diagnostic support for autistic adults. Social media, blogs, or local publications can be platforms to share your experiences and insights, potentially reaching a wider audience.

Remember that change often happens through persistent efforts and a collective voice. By highlighting the challenges and advocating for better support, you contribute to a larger movement that seeks to improve the lives of autistic adults and address the gaps in the current system.