Hi I'm Holdingon - funding for care in our own home after stroke

holdingon

Hi everyone,  hubby (58)  had massive stroke 4 years ago. Has hemiplegia, requires hoisting for all transfers from bed, chair, shower chair etc. He was receiving fully funded CHC care in our home as he was EOL, tube fed, tracheostomy in place.   His tracheo was removed a year ago so now he can speak a few words and eat some soft food.    CHC have decided he is well enough so no longer qualifies and funding will cease in 10 days.  We did all the DST reports etc and they changed his grading to moderate across everything.     
Social services are now involved but due to husband's disabilities he needs extensive care.   I was told yesterday to expect a massive shortfall in what SS can offer and what I will have to contribute- potentially £500 a week to his care costs.    I don't know what to do, I'm in shock, how do I afford that kind of money? I work full time but no way I can cover that sum. Where should I turn to?

Albus_Scope

Hi there @holdingon and welcome to the community. 
I'm sorry to hear about your husbands stroke, but I'm glad there's been some progress in his recovery.

Just to let you know I've moved your post to a different category, where more of our super helpful regulars will be able to see it and offer some advice. I hope that's ok? 

holdingon

Thanks very much 

Kimmy87

I'd recommend contacting your local Disability Advice or Citizens Advice bureau. 

Your husbands GP surgery may also be able to point you in the right direction. 

Have you been through any financial assessments?

holdingon

Thanks Kimmy87.   Yes financial assessment has been done.  Will try both of your suggestions .  Many thanks 

Kimmy87

The Stroke Association might be worth talking to:
https://www.stroke.org.uk/finding-support/stroke-helpline