Rejection Sensitivity Dysphoria (RSD) and coping skills.

Strawberry1

I have read some of this and it's exactly me . Definitely. 

WhatThe

@Albus_Scope This really should be pinned to the first page. It’s very important information for those all involved. For self discovery or to help the understanding of ones relative. Friend etc. 
This will get lost along the way. Where as it will help hundreds if seen. (Ada)
   
Aspergers is still a recognised condition, they just don't diagnose it anymore

From NAS website -

However, some people continue to describe themselves using this terminology, usually because their diagnosis forms an important part of their identity in a way that is not connected to official diagnostic terminology or its historical context.

WhatThe

@Albus_Scope This really should be pinned to the first page. It’s very important information for those all involved. For self discovery or to help the understanding of ones relative. Friend etc. 
This will get lost along the way. Where as it will help hundreds if seen.


Ada, I think this is an exceptional comment from you and it would be a shame to lose it 

Strawberry1

@Albus_Scope , thank you for chatting about this subject because it has opened my eyes and at least i don't feel foolish anymore.  So thanks 😊. 

WhatThe

Beaver, thanks there was an early morning message from Ada which must have been deleted along with the rest so yes.

I hope posting what I did was fine of course. I identify as Asperger's as lots of us do. 

Albus_Scope

No problem @Strawberry1, I'm glad it was helpful.

And I agree @WhatThe, just because it's not diagnosed any more, personally I see no issue at all if people use the term, as that's what they were diagnosed with. 

Strawberry1

It was very helpful @Albus_Scope .very helpful indeed. 

WhatThe

Dr. Lorna Wing OBE introduced the term Asperger's along with the diagnostic procedure still used, DISCO - Diagnostic Interview for Social and COmmunication disorders. 

She was a leading psychiatrist, co-founded the National Autistic Society and carried out the research which enabled thousands of girls and women to be recognised as autistic. 
 

Albus_Scope

Lorna Wing coined the term Asperger's syndrome in 1976. Then it was removed from diagnosis in 2013 as it was easier using a 4 stage system (DSM-V) to diagnose levels of ASD. 

WhatThe

In 1981, Lorna Wing launched the term Asperger’s syndrome in a scientific paper in Psychological Medicine. She described Hans Asperger’s ‘autistic personality disorder’ and speculated about outcome and aetiology. Thanks to this publication, Hans Asperger’s findings from the 1940s were also introduced to the English-speaking part of the world. Since then, Asperger’s syndrome has become one of the most talked about diagnoses and concepts in clinical medicine.

NIS National Institute for Health

Albus_Scope

Though from a brief history of Aspergers;

"First described in 1944 by Hans Asperger (1944), it was not before 1994 that Asperger Syndrome (AS) was included in the fourth edition of the Diagnostic and Statistical Manual of Mental Disorders, only to disappear in the Manual’s fifth edition in 2013."

bookrabbit

When I asked for a fit note using the term ASD it was refused by one of the GPs at the practice because it wasn't reflected in my notes because my diagnosis says Asperger's!!

I usually say ASD these days because I thought that was the modern term but apparently the GPs system doesn't have a tick box for it but only for Asperger's!!

I got really worried because I referred to it as ASD in my PIP form and then the GP was saying I don't have it and they got really exasperated with me when I told them how anxious they were making me:( I thought PIP were going to think I was making it up!!

But as it turns out they don't even contact GPs anymore I needn't have bothered worrying about it.

The.GPs did listen though and now they put ASD on my fit notes. Which hopefully I won't need for much longer because I had my WCA yesterday, although most of the questions were about my physical condition not the ASD anyway.

Jimm_Scope

GPs are still quite woefully ill-informed when it comes to neurodiversity. Especially if they did their training a few decades ago now. Our knowledge in this area has increased so much in the past few decades and we're still only really scratching the surface. But it's rare this gets fed down to front-line doctors unless they're actively looking for the information.

RomfordRob

Hi

This is my first post here and I hope you'll be sympathetic. I'm 52 and haven't got a diagnosis yet because it's damn hard to get an assessment through the NHS. I'd never even considered the possibility that I was autistic until the Psychiatrists suggested it on the Psychiatric wing of Pentonville Prison this year. On that note it was my first short spell in prison in my life and boy was the corruption in the whole criminal justice system shocking. That's despite spending 15 years in the mental health gulag after an employer and the Police tried to frame me (cue 15 years of Police harassment).

But back on topic: I take rejection by women hard because if I really like them, I really like them. I tend to form strong bonds with people and I'm always the one that tries to keep in touch with old friends and am surprised when it turns out they've deleted my number.

I also feel shame very strongly; a couple of things which happened to me in my early twenties probably shaped my whole life to date, when on reflection a lot of people would have got over them easily.

There's a lot more I could say as I try to self diagnose if anyone's keen to help me.

Rachel_Scope

Hi @RomfordRob. I've copied your comment and posted it in the autism category for you. There's the link below so you can find it easily 😊

https://forum.scope.org.uk/discussion/120277/possible-autism

StodgySquare

I'm currently waiting on results of my ADHD referral and it's been difficult. RSD is just so exhausting however your advise is reasonable @Albus_Scope. ❤