Hi, my name is Patience! — Scope | Disability forum
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Hi, my name is Patience!

Patience
Patience Community member Posts: 4 Listener
I'm a disabled mum and unpaid carer for my two disabled adult children (24 and 26) who live at home with me. I get lonely late at night when I'm still up caring for my eldest son who has a day-night sleep reversal disorder amongst other things. Hoping I can find other parent carers to chat to in the evenings/early hours! Any night owls out there?

Comments

  • Albus_Scope
    Albus_Scope Posts: 3,817 Scope online community team
    Heya @Patience and a big welcome to the community.  I hope you're doing ok today?

    If you wanted to chat and make some friends, I recommend our Coffee Lounge, or if you wanted to pass some time with some games, our Games Room is the place to be.  We have a fair few night owls here, so you'll be in good company. 

     If you need support with anything, please just ask, we're all here to help. :)
    Albus (he/him)

    Online Community Coordinator @ Scope

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  • Patience
    Patience Community member Posts: 4 Listener
    thank you albus 😊
  • Autism_at_40
    Autism_at_40 Community member Posts: 724 Pioneering
    Hello,
    I'm not a parent or carer.. but I am a bit of a night owl.  So I am usually around most of the night, at least for now anyway.  Hopefully, you will join in on some of the games and we can keep them going through the night?
  • Jimm_Scope
    Jimm_Scope Posts: 2,670 Scope online community team
    I used to be such the night owl myself, I am a lot more strict with myself now! Having something that requires me to be awake during the day does help I have to say...
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

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  • Patience
    Patience Community member Posts: 4 Listener
    Hello,
    I'm not a parent or carer.. but I am a bit of a night owl.  So I am usually around most of the night, at least for now anyway.  Hopefully, you will join in on some of the games and we can keep them going through the night?
    that sounds like fun, I'll definitely check the games out and hopefully see you there!
  • Patience
    Patience Community member Posts: 4 Listener
    I used to be such the night owl myself, I am a lot more strict with myself now! Having something that requires me to be awake during the day does help I have to say...
    🦉 I'd be in bed by 10pm every night I think if it was an option, my body has become used to surviving on very little sleep. But I worry about the effect that may be having on my health. But it can't be helped so there's no point worrying!
  • Albus_Scope
    Albus_Scope Posts: 3,817 Scope online community team
    I went through 2 years of being unable to sleep at night due to pain, so I survived by power naps during the day. 
     It took a long while afterwards to get back into anything like a 'normal' sleep pattern, so I usually get to sleep at about 3am now. So you may see me popping by in the middle of the night too.  :D
    Albus (he/him)

    Online Community Coordinator @ Scope

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    Opinions expressed are solely my own.
    Neurodivergent.
  • Autism_at_40
    Autism_at_40 Community member Posts: 724 Pioneering
    Patience said:
    Hello,
    I'm not a parent or carer.. but I am a bit of a night owl.  So I am usually around most of the night, at least for now anyway.  Hopefully, you will join in on some of the games and we can keep them going through the night?
    that sounds like fun, I'll definitely check the games out and hopefully see you there!
    Yes, hope to see you there too!

    I have tried to switch my sleeping pattern, but I just can't seem to do it at the moment.. 

Brightness

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