Hi, my name is gloriacun23! — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, my name is gloriacun23!

gloriacun23 Community member Posts: 9 Listener
My daughter has claimed DLA since the age of 8 and when she turned 16 in August was given the choice to apply for PIP. She has adhd, autism, ODD, anxiety disorder, asthma, multiple allergies (anaphylaxis), scoliosis and hyper mobility. Her conditions have not improved over the years, she is actively seen in clinics, including at CAMHS regular, has an EHCP and she still requires the same level of support for most everyday activities. We completed the forms with support from an advocate and requested a paper based assessment as my daughter would not mentally cope with a telephone or f2f assessment. We received a text a few days ago with a telephone assessment date and time. I was concerned and called the independent assessment service asking why, I was then asked why she wouldn’t be able to take part and I was honest and briefly explained the reasons. I advised that my daughter’s MH practitioner has written a supporting letter explaining the effects a telephone/f2f assessment would have on her.  Their response was that as in the appointee I can complete the assessment, but my daughter would need to be there when they call. They have more or less indicated that she would not need to take part, but just be present. 
I did ask whether I should send the letter in and they said I could try and send it to DWP but didn’t seem to see the point, as they would be carrying out the assessment with me as the appointee which wouldn’t caused stress to my daughter. I’m just confused whether I should cancel the appointment and re request a paper based assessment, send in the MH supporting letter and wait for an official rejection for a paper based assessment before accepting the telephone assessment.  My worry is that I accept the telephone assessment and on the day the HCP tries to pursue assessing my daughter over the phone instead of going through the assessment with me as the appointee, as the advisor on the phone said. Has anyone had any experience of acting as an appointee on behalf of a son/daughter, family member. Would really appreciate any advice or experiences. The assessment is booked for the 14th February 2024.


  • poppy123456
    poppy123456 Community member Posts: 54,271 Disability Gamechanger
    Question answered on your duplicate thread here. https://forum.scope.org.uk/discussion/114554/hi-my-name-is-gcun23#latest
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
    Hey @gloriacun23, welcome to the community :) I see you've had your question answered in another part of the community so I thought we'd instead use here to chat!

    How are you doing? It really sounds like you're quite the advocate for your daughter. I have ADHD so I know how hard it can be, but you seem to be an amazing source of support for her.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
    Want to give us feedback? Complete our feedback form now.
    Opinions are my own, such as mashed potato being bad.


Complete our feedback form and tell us how we can make the community better.