I have a 28yr son with Autism who’s lived in Supported living for 7 years. He is verbal. There are 4 other residents. The supported living then manager ( since has been new ones) moved in another resident who’s non verbal with Autism . Since that time my son hasn’t liked where is is because of the noise the non-verbal resident makes. Has my son has sensitive hearing.
Another room became available in another residence owned by same care organisation.
20 minutes away they showed my son the place and he liked it. The manager where he’s staying contacted Social Team . A mental capacity test was done at my sons supported living place. By a Social worker had never met my son before. But
because he couldn’t decide because she brought a location up to my son that threw him off. She said he was unable to make a decision.
She then came up with to give him more choice . The local authority will have to choose a 2nd option which the authority will choose. I said didn’t have to do that before she informed me a lot as changed .
I later found out they are basing this 2nd option on care vs cost.
And that the local authority will decide out of the 2 placements.
My son dosent live in the Borough that pays for the care . Has he previously attended a residential college when he was 17 which took him out of the Borough where we lived.
I feel the Borough that’s funding he’s care are looking to make cuts and my son will have to go to the cheaper cost place chosen by the authority. And not the room in the place 20 mins away run by the same care company.that he currently is at. Which would be less of a truma to my son has the care and place is similar to where he is staying.
Plus they have there own maintenance people that can move he’s stuff eg bed into the new room.
He knows some of the staff there. I’m trying to Communicate with the Social Worker . They are making out its choices but they will be looking at the costs of the second place has they will prob be phoning around to find out care vs cost.
This authority has overspent there budget and are having to make cuts.
But the issue wasn’t so much with the care . Where he’s living. It was the shouting tones from the non-verbal resident. Which I know isn’t the residents fault. But my son’s hearing makes it so loud for him.
Because I’m only an appointee has a similar thing happened when I tried to get power of attorney. A mental capacity test was done by there local gp . The gp didn’t contact me and I found out after the apt. He didn’t have the mental ability to make the decision. Autism is tricky as it depends on there mood. How they are spoken to. Processing time etc.
im now as he’s parent and disabled myself . Arthritis making it hard to walk & don’t drive or live in the Borough he’s now living in . Know what to do has I don’t want the funding authority to take the decision away based on the cheaper cost place they are sourcing has my sons second option.
when he was quite happy moving to the place 20 mins away . Has he won’t have choices but the funding authority are calling all the shots . Social worker met him just the once. The deciding panel never having to meet him.
my son left in a worser position
where do I get help? citizens advice can’t help has I need to be with my son and we don’t live in same Borough. I had advocate mentioned but I’m not in the Borough where he lives ?
He comes to visit me by train regular but stays weekends. So we do see one another
but at my wits end
