Hi, my name is hugo888! I am currently claiming PIP — Scope | Disability forum
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Hi, my name is hugo888! I am currently claiming PIP

hugo888 Community member Posts: 2 Listener
edited February 17 in PIP, DLA, and AA
Hi everyone I hope everyone one is as well as they can be,

I have lupus and recently had covid and have been off work due to post covid and now advised by consultant as having fibromyalgia as well.

I am currently claiming pip only standard living and although cant stand for longer than 5mins and can only walk once on a good day up to 100meters once using stick and kness supports on both legs then need to goto bed wondered would it be okay to inform DWP of changes or if i do could they decide to stop my current claim altogether
as i am not working as i can't due to health and signed off by GP i can't risk not having this income with only on SSP. The experience on the phone when i initially spoke to the DWP  to make the claim was very bad with the person laughing at me and then another person took over being vile and saying i was not as bad as my report said and my consultants report said they advised i will not have any claim to the moving about bit of pip i cant remember what its called the wording hopoe make sense.

any advice welcome.

Thank you


  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
    Hello @hugo888

    Welcome to the community! I'm sorry to hear you have been so unwell and now have a new diagnosis to navigate through. Can I ask, have you been given / offered support with the fibromyalgia? 

    What you went through with your phone call to the DWP is awful. I would advise reaching out to Citizen's Advice to help support you with your claim. You may even find help locally by reaching out to your MP or attending one of their surgery days. 
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • poppy123456
    poppy123456 Community member Posts: 54,189 Disability Gamechanger
    If you report changes then you will be sent another form to fill in and return with any additional supporting evidence. Another assessment is most likely because most people have them. 

    Once a decision is made your award could either remain the same, be increased or stop completely. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • hugo888
    hugo888 Community member Posts: 2 Listener
    thank you for your replies I will take consultants advice and wait until I get over this flare caused by Covid as he believes then see where we go from there. DWP is too stressful and increases anxiety too not good for my health!!!! Energy vampires 


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