Single sided deafness. Do anyone know where I stand with this when it comes to renewing my PIP?

Sophs50522

I've recently suffered from sudden hearing loss in my one ear. Its a profound loss so an hearing aid won't help and I'm not eligible for a CI because i have moderate hearing in my good ear. 

I'm struggling from really bad Tinnitus and voice distortion on top of a severe one sided feeling loss.

It's impacted me physically and mentally. 

I currently receive PIP at daily rate care and low mobility. 

Do anyone know where I stand with this when it comes to renewing my PIP? 
It's severely impacted my mental health. I get PIP for severe mental health and now I feel this have truly physically disabled me and that my hopes of ever returning to work are out the window. 
Ashamed to admit I've thought about suicide! 

I genuinely don't think I can cope living like this much longer!
My hearing kept me sane on my bad days. Now I can't watch tv properly or talk to people without have a mental break down! 

Any advice would be appreciated. I know it may sound pathetic to some but if you knew my history I promise you'd understand. 

Hannah_Alumni

Hello @Sophs50522

Welcome to the community! I am so sorry that you are going through such a tough time with your health. I just wanted to check in and ask if you are ok and if you have support around you?

Please remember there are some great organisations out there that will support you like Samaritans if you need someone to talk to  

WhatThe

Don't wake a sleeping dragon is my advice. Wait until you hear from them.

Keep notes about your recent hearing loss in the meantime. 

Sophs50522

Sophs50522 said:

I've recently suffered from sudden hearing loss in my one ear. Its a profound loss so an hearing aid won't help and I'm not eligible for a CI because i have moderate hearing in my good ear. 

I'm struggling from really bad Tinnitus and voice distortion on top of a severe one sided feeling loss.

It's impacted me physically and mentally. 

I currently receive PIP at daily rate care and low mobility. 

Do anyone know where I stand with this when it comes to renewing my PIP? 
It's severely impacted my mental health. I get PIP for severe mental health and now I feel this have truly physically disabled me and that my hopes of ever returning to work are out the window. 
Ashamed to admit I've thought about suicide! 

I genuinely don't think I can cope living like this much longer!
My hearing kept me sane on my bad days. Now I can't watch tv properly or talk to people without have a mental break down! 

Any advice would be appreciated. I know it may sound pathetic to some but if you knew my history I promise you'd understand. 

yanni said:

@Sophs50522 I am so sorry that you are going through this, I have severe - profound loss in both ears and tinnitus. I have had hearing loss all my life but the tinnitus was triggered by medication 10 years ago. I went to some very dark places when it started as well, you have nothing to be ashamed of and it is not pathetic to be struggling with what you are going through.

The tinnitus will become bearable. It will take some time but your brain will learn to ignore it most of the time.

(You won’t believe this anymore than I believed the person who said the same to me when mine started )

Obviously you are having a horrible time of it at the moment and stress makes it worse so it is a bit of a vicious cycle but it will get better.

The key seems to be to distract your brain from hearing the tinnitus sound.

There are tinnitus maskers which ‘covers’ the tinnitus for a while so you have a rest from the tinnitus noise. You Tube has white / brown / pink noise videos so check these out and see if they help.

Try to avoid absolute silence because the tinnitus will seem louder. Have some low level noise that distracts you from the tinnitus. Don’t be tempted to blast loud noise at it as you will only make it worse.

 As time goes on you will find you notice it less and less.

 I am wondering who told you that a hearing aid is no use?  If you have any hearing in your bad ear it is worth asking for a second opinion about a hearing aid. I have profound loss in one ear and wear a hearing aid in both ears. I can’t understand speech in the profound ear even with the aid but it gives me some background noise which reduces the tinnitus a bit and makes things a bit more balanced.  Perhaps you can ask your GP to refer you to another audiology department at a different hospital?

 

When you are ready,read up on communicating with someone with hearing loss so you know what you need other people to do to make it as easy as possible for you to understand them. Then explain this to people. Most people want to help if they know what to do. 

Research the assistive listening devices and technology such as speech to text translators that are available.

 Employers are required to make reasonable adjustments to enable you to do your job. Depending on what you do for work it may be possible to adjust your existing role or it may be necessary to look for something else work-wise. I have had some very supportive bosses and colleagues and some not so but deaf and hearing loss people do work.

 

As you probably know PIP is about how your condition affects you rather than because of any diagnosis.

 If you are having difficulty understanding speech reliably then you should receive points under the Communicating Verbally activity.

If you can’t hear traffic approaching you should receive points under Mobility Activity 1 for needing someone with you when undertaking a familiar journey to keep you safe and also to help you communicate if something unexpected happens (hearing a tannoy announcement about a change of platform for example).

 There may also be points for Washing and Bathing if you are unable to hear a smoke alarm and for Engaging with Others if you have difficulty interacting with other people.

 You need to have had the difficulty for at least 3 months and expect it to last at least another 9 months.

 If you have any questions please come back and ask. 

Thank you so much for that, it was comforting to read. 

I've been struggling, extremely bad, having two young children and having to deal with this change have been challenging. I really don't know how I've got through the last few weeks. 

I know being deaf doesn't impact people's ability to work but honestly my mental health was extremely really bad prior to this and its affecting me on a whole different level. I genuinely feel I don't think I'm ever going to be mentally well enough to work again. I can't even get out of bed. Then I have the fear of being forced into work and not be able to cope with it and my children are impacted hugely.

I appreciate your support, apologies for the late response, I've just been trying to come to terms with what is actually happening to me. 

Sophs50522

Hannah_Scope said:

Hello @Sophs50522

Welcome to the community! I am so sorry that you are going through such a tough time with your health. I just wanted to check in and ask if you are ok and if you have support around you?

Please remember there are some great organisations out there that will support you like Samaritans if you need someone to talk to  

Thank you, I am thankful I have great support around me. I do still struggle though unfortunately 

Sophs50522

WhatThe said:

Don't wake a sleeping dragon is my advice. Wait until you hear from them.

Keep notes about your recent hearing loss in the meantime. 

Ah yes I thought so. Will keep notes thank you. 

GraceandConnie2020

https://forum.scope.org.uk/discussion/115308/single-sided-deafness-do-anyone-know-where-i-stand-with-this-when-it-comes-to-renewing-my-pip

Hi I have applied for pip due to one sided hearing loss and the awful vertigo tinitus that comes with it and have been refused twice