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livlov said: Hi all new here, I was just wondering if anybody on here that has a colostomy or crohns has experience with benefits assessments in relation to rectal stump mucus discarge and whether this counts as being unable to control bowels/ incontinence as any of you that has this knows is often uncontrollable and just well not very nice and often requires more frequent change of underwear and other clothes. It's a case of solve one problem along comes another.Would be grateful if anybody can advise or has experience of this scenario.
livlov said: @rubin16 hi thanks for your reply, can I ask if you had a colectomy or whether you still have your colon/ a rectal stump? I still have mine at present as my colostomy was supposed to be temporary to help heal fistulas which were causing sepsis but I feel it will be permanent as these are stubborn things that do nothing but drain all the time. The diverted part of the colon still produces mucus so still things pass through the back passage often unexpectedly, oh the joys
Have you tried those anti-diarrhea tablets you can get from B&M (6x tablets for £0.59)?
While I think that might be helpful in some cases, as someone with Crohn's disease I wouldn't be taking any medication that could affect my bowels without consulting a doctor first! Can't always be certain how it will affect the bowels. So perhaps not great for this situation.
In future, it is best if you say what worked for you, then straight up suggesting medication without further context. As we do have a "no medical advice" rule.
For instance, I have Crohn's disease, in a post about Crohn's disease and medication, I would maybe say something like,
I take adalimumab and it's done wonders for me. I don't know if it's something your doctor has considered?
My Surgeon, my stoma nurses, and specialist consultants, all told me to take these tablets, but I did have ulcerative colitis instead of Crohn's. But I would imagine, once you have an ileostomy, you are also cured like in UC.
Ah I was editing my comment again sorry @JF7891, that actually provides the context I was talking about!
Unfortunately with Crohns there is no cure, as it can affect the entire gastro system. You would have to take out the entire system from mouth to anus to cure it, and that's just not possible.
Thank you @Jimm_Scope I had no idea, shows what a blunt ignoramus I was… so sorry. Is there any other treatments you receive?
Don't call yourself an ignoramus @JF7891 ! There's many conditions I don't know about either.
I don't take anything more than adalimumab anymore. But I have had to be on steroids before when it was really bad, tried aziathiaprine for a bit, but that doesn't help at all. Which is why they decided to try me on adalimumab and it helped.
Did you hear about that new discovery of this protein that might be the cause of all of this? https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway
Yes I did read that! I was quite excited by it. From what I read they're hoping there will be better, more targeted treatments that will affect the immune system less?
Yes indeed, the fact that we can screen for heart problems with CT and MRI scanners together with AI image analysis now, makes me hope that soon, they'll detect inflammation as well, and hopefully making tests less invasive, but most importantly be able to follow the inflammation along to it's actual origin inside the body
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