Crohn.s

Paul79

Hello just wondering if anyone with crohn.s disease when in remission still has symptoms i am just wondering if i have ibs has well has crohn.s has anyone have crohn.s and ibs and how do you manage both

Jimm_Alumni

Hey @Paul79, I have Crohn's disease, I also had (have?) IBS before I had Crohn's.  I definitely still get some issues even when in remission. Certain foods I still cannot eat in remission, and they can even trigger a flare. 

For the remission symptoms, for me it's really about diet control. I find out what foods are more likely to cause the problems and then avoid them. For instance I no longer eat any red meat. Sure I do miss having a nice steak now and then, but I've accepted it's better than the problems it causes. I tend to also have to be very careful with the amount of bread I eat. It's not actually the gluten, it's the amount of fibre. Gluten free bread is actually worse for me because it usually has more fibre!

Are you in contact with your local IBD team and talked to them about your issues even while in remission at all?

rubin16

I have crohn's disease and IBS, I also have to be careful what I eat otherwise it'll trigger a flare and I'm on medication for my IBS (Mebeveline) which helps manage it and stops the cramping pain. For me eating anything spicy or has spice in it can trigger a flare, I have to be careful on not too much dairy food too.

Paul79

Hello  Jimm

yes i am in contact with my IBD Team and i have appointment in May i do have same problems you have with eating chips/ bread and  i away have had problems with fizzy drink alway  sick after so avoid . i feel at the moment trying to keep on top of my bowel problems the problem is i dont know do i have ibs has well has Crohn's and how to i manage both.

rubin16

Paul79 said:

Hello  Jimm

yes i am in contact with my IBD Team and i have appointment in May i do have same problems you have with eating chips/ bread and  i away have had problems with fizzy drink alway  sick after so avoid . i feel at the moment trying to keep on top of my bowel problems the problem is i dont know do i have ibs has well has Crohn's and how to i manage both.

I didn't know I had IBS too with crohns until I had a crohns flare up in february this year and even though they had the crohns flare under control with steroids was still having cramping pain so they diagnosed me with IBS too. I currently take mebeveline regulary for my IBS which seems to help wonders. Maybe its something you could discuss when you see the IBD Team, but you can be put on medication for it which stops the IBS cramping.

All the best.