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Dsytonia with CP and post impairment disorder
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DanceDeb
Community member Posts: 36 Connected
Just an update of previous discussions, from the xray and letter from the London University hospital. It clear that have dsytonia too which make sense as it effects my facial expressions, speech, and high tone causing my jaw to pop out and causing me discomfort while eating in right jaw and effecting my ear.
Also the xray showed mild oa of both hips and degenerative spondylosis.
So definitely effects of post impairment disorder.
Just brought a tilt in space armchair to reduce pressure off my back and now come off citrpram, and now take 10mg of nortriptyline which has helped me with fatigue and pain at night. So thank you Richard for your suggestions to referral to London University hospital it given me reassurance and improve my life. So glad i am part of this amazing organisation.
Also the xray showed mild oa of both hips and degenerative spondylosis.
So definitely effects of post impairment disorder.
Just brought a tilt in space armchair to reduce pressure off my back and now come off citrpram, and now take 10mg of nortriptyline which has helped me with fatigue and pain at night. So thank you Richard for your suggestions to referral to London University hospital it given me reassurance and improve my life. So glad i am part of this amazing organisation.
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I'm so glad Richard was able to help you @DanceDeb that's great progress.
Albus (he/him)
Online Community Coordinator @ Scope
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Neurodivergent. -
Thanks Richard
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You are most welcome @DanceDeb. I'm so glad you are getting the answers you need.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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