At a stage where we are wanting to learn more about CP and seek support

Dalep123

Hey everyone.

This is my very first post here.. so please be gentle :)

Our story.

My wife and I noticed when my son was 3 or 4 months old that he wasnt using his right hand as much as his left. We figured that it maybe preference. But took him to the doctors... She said she wanted to give him a few months and see if there were any changes... fastforward 6 months the consultant wanted him to have an mri and a load of other tests.

We got a phone call to go to an appointment a few days later (cue anxiety) that appointment changed our lives . We were told that he had a hemiplegia. The rest of the appointment was a blur! And as you can imagine it was a lot to process there was tears, frustration and alot of google searches.

We took time to breathe, process the diagnosis and then started to figure out what we could do to help our little boy.

Now we are at a stage where we are wanting to learn more about CP and seek support from you guys who are further along in the journey and generally give us advice and guidance etc...

Anyway thanks for reading . Hoping I can hear from some of you soon

Dale

Dalep123

Thanks for reaching out. I hope you are right.

Richard_Scope

Hi @Dalep123

Thanks for your post and welcome to the community.

I would first like to say receiving a diagnosis can bring up a mix of emotions and it is very important for you to remember that there is no set way that you should feel.  

Your son should be under the care of a paediatrician and should be given access to regular physiotherapy this will help with his mobility and coordination. We have lots of information about Cerebral Palsy

I live with CP too and I'd be more than happy to talk to you over email about your thoughts and concerns. Please remember that you are not alone in your journey.

Albus_Scope

Heya @Dalep123

I just wanted to pop in and say a quick hi too. 😁

Dalep123

https://forum.scope.org.uk/discussion/comment/869361#Comment_869361

Hi Richard.

Thank you for reaching out to me.

It was really difficult for the first few weeks but we are trying to be positive for him.

So we are with a peaditricion consultant now but will move to the community team. We have seen a physio twice and are going to see an OT soon too. We are hoping to get to see the orthotics team too.

I will certainly be reading up on the condition.

I really appreciate the calm words and would love to chat over email. Thank you Richard.

Dalep123

Hi @Albus_Scope thanks for saying hi!! Nice to meet you.