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Hi, my name is MKH

MKH Community member Posts: 5 Connected

My 25 years old son had Glandular fever last year and now unfortunately after post viral fatigue he now has ME/CFS and is housebound. Prior to that he was and still is suffering from high anxiety which he still has CBT for on line. It's really hard to accept that basically he's disabled now. He might not look it but he can hardly walk and is sleeping with a blackout eye mask on most of the day, because this horrible disease has other symptoms too like dizziness, eye sensitivity muscle pain.

There no help. He's too anxious to talk to anyone. I am trying to claim PIP for him, but still waiting to get someone to come round to verify me so I can be his appointee. Ive had to cut back my hours at work too.

Im thinking of now getting a wheel chair for him. But first I will rent one to see how we get on.

I tried to go online on the ME connect website for some support or befriending but no one goes on it. I thought I'd try this. Maybe this community is more supportive.


  • Beaver79
    Beaver79 Community member Posts: 23,885 Disability Gamechanger

    Hello @MKH Welcome to the Community. We are a friendly and supportive forum so please have a look around and join in when you are ready. If you have any questions please ask. Do you have any help with your son? Renting a wheelchair to see how you and your son manage this seems a very good idea. Anytime you feel like a chat we are here for you. Take care.

  • MKH
    MKH Community member Posts: 5 Connected

    thank you Beaver79 ❤️

  • Albus_Scope
    Albus_Scope Posts: 5,307 Scope online community team

    Heya @MKH and it's a warm welcome from me too. 😁

    I'm sorry to hear about your son, I understand how tough that can be to deal with, but we're all here to offer help and support in any way we can. Coming to terms with suddenly being disabled can be a lot to take in, but just go gently with things and hopefully the CBT will offer some help to your son. I found talking things through really helped. Renting a wheelchair is a very good idea too, it sounds like you're on top of this. :)

    If you wanted a chat with folks, I recommend checking out the Coffee Lounge, lots of people hang out in the How's your day so far discussion. 😊

    Albus (he/him)

    Online Community Coordinator @ Scope

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