Hi everyone
I'm wondering if anyone has any advice for me as a wheelchair user recently diagnosed with thyroid cancer. I'm having further tests. I only know about the one mass at the moment but my first symptoms were swollen lymph glands. I have hospital appointments every day this week and it's taken it's toll on me. My whole body hurts because I haven't been able to stick to a routine and rest. I have had to order a portable bladder bottle-thing as patient transport makes me late but there's no toilet I can use on the 3hr journey to hospital. I've got bladder disease so it's not possible to go otherwise.
I am worried about the constant scans as they struggle to get the contrast in me due to vascular problems my veins keep blowing out. I have another this week as they couldn't physically get the dye in me. I feel like these are things that people do not have to deal with if they were healthy before they get the diagnosis?
I've started to have some dark thoughts like what's the point? I have only come to terms with being disabled in the past year or so and this has set me back.
Whats upset me most is being dismissed about what is and isn't normal for me. My swallowing problems have got worse for months, which was Lawrence the Lump restricting my swallowing. Yet, when I mentioned it to my GP they just said that I have a diagnosis of dysphagia and I have management advice so there's not much more they can offer other than water thickener. I've already had all the puree diet advice and stuff from ENT. I do agree that there isn't anything they can do but maybe they should have investigated the nagging pain and worsening difficulty swallowing if I'm telling them that isn't normal and it has never been so bad? My disability masked my cancer symptoms and now I'm resentful towards my body.
The other unwanted thought I'm having is that the doctors don't care as much about curing me. Nothing any of them have done has confirmed that and I know that's me telling myself that.
Thanks for reading!
