My son was given a lifetime award of DLA at 16 bc it was clear then he wd have difficulty getting or maintaining a job. He is 32 now and bc we are lucky enough to be able to afford it, he now lives independently in a flat. His DLA was taken away and when I said to someone at the benefits office that he had a lifetime award, I was told it was the lifetime of the benefit not the person! When we applied for PIP and went for the assessment (keeping in mind I’d discussed with him all the answers I gave and why) he contradicted practically everything I said so wee got nothing. I cdnt follow it up bc I have my own health issues and he can’t do it so he now receives nothing other than what we give him every month. I have tried to talk to him about applying for either PIP or ESA but he actively avoids the entire subject. I’m at a loss what to do but now we have a situation where he is having to pay full council tax (or rather WE are) bc he wd only be entitled to a reduction if he was on benefits. It’s a vicious circle and I’m utterly exhausted. I’ve tried the CAB and they didn’t have any answers so any advice wd be welcome.
