Hemiplegic migraines

sparkleapril
sparkleapril Online Community Member Posts: 82 Connected

This is my disability I have been struggling with for the last year.

Seeing an neurologist today.

Hemiplegic migraines causes sezuires and due to this I am in wheelchair.

Does anyone else suffer with this or something similar?

Comments

  • michael57
    michael57 Online Community Member Posts: 962 Trailblazing

    hi been suffering from cluster headaches for some 40 odd years had to stop using my injections almost a couple of years ago due to a couple of strokes i now take a high dose of calcium channel blockers they help to a certain degree good luck in your quest for answers and nice to meet you

  • Rosie_Scope
    Rosie_Scope Posts: 4,785 Scope Online Community Coordinator

    Good luck at your appointment @sparkleapril! I've had these in the past, but I haven't had a full blown one for quite a while now which I'm really grateful for. Hope you can get some answers and support, it can be really horrible to deal with!

  • sparkleapril
    sparkleapril Online Community Member Posts: 82 Connected

    Had my appointment yesterday with the neurologist I am also been diagnosed with Functional neurological disorder.

  • Sandy_123
    Sandy_123 Scope Member Posts: 61,008 Championing

    Hi @sparkleapril how do you feel with your diagnosis hope they explained it all to you

  • sparkleapril
    sparkleapril Online Community Member Posts: 82 Connected

    Feel abit **** but relieved that I know what's wrong and that I can move forward the best I can.

    Finally they have listened to me that I am right.

  • Sandy_123
    Sandy_123 Scope Member Posts: 61,008 Championing

    Yeah it's good to know then you can look it up etc