New here. SIL has PKD, I'm worried about my children's kidney scans. Anyone been through similar?

guweeze
guweeze Community Member Posts: 1 Listener
edited August 2024 in Start here and say hello!

Hi

My SIL has PKD. She is the first in her family to have it, as far as we know. Her parents had scans of their kidneys and liver which showed nothing.

Her brother, father of my children, hasn't had a kidney scan yet. I'm quite anxious about it, obviously regarding my children.

Has anyone been through anything similar? Or does anyone have any opinion on the situation?

Many thanks

Louise

Comments

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    Heya @guweeze and welcome to the community.

    I'm afraid I don't know a great deal about PKD, but I understand your concern regarding the scans. I'd try not to worry too much as the gene mutation tends to come from parents and sometimes can just appear randomly. I'm hoping some of the community will be able to put your mind at ease with their input soon.

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