New here. SIL has PKD, I'm worried about my children's kidney scans. Anyone been through similar?

guweeze

Hi

My SIL has PKD. She is the first in her family to have it, as far as we know. Her parents had scans of their kidneys and liver which showed nothing.

Her brother, father of my children, hasn't had a kidney scan yet. I'm quite anxious about it, obviously regarding my children.

Has anyone been through anything similar? Or does anyone have any opinion on the situation?

Many thanks

Louise

Albus_Scope

Heya @guweeze and welcome to the community.

I'm afraid I don't know a great deal about PKD, but I understand your concern regarding the scans. I'd try not to worry too much as the gene mutation tends to come from parents and sometimes can just appear randomly. I'm hoping some of the community will be able to put your mind at ease with their input soon.