Fasciculations and muscle atrophy
I have diffuse, daily intermittent fasciculations mainly in my left limbs (upper arm, quadriceps) and trunk. I also have diffuse muscle wasting, more prominent on the left side. I have occasional fasciculations in my right quadricep, lip and (rarely) tongue. EMG/NCS was slightly abnormal (right side) 2 years ago and the slight abnormality was put down to spondylosis (arthritis and disc degeneration disease shown on MRI in 2022). I am on the waiting list for an outpatient neurology consultation (since June this year), and I expect an appointment later this year - I have taken videos of the fasciculations in readiness for that appointment. I was diagnosed with a "motor syndrome" by a neurologist in 2022. Neuromuscular disorder was subsequently ruled out by a specialist. I have chronic TBI along with other diagnoses.
Pain and fasciculations are aggravated by movement/exertion.
I am aware the muscle atrophy could be neurogenic and also down to deconditioning . I am also well aware fasciculations could be caused by nerve damage via spinal issues/chronic tbi (I am a former rugby player), but they have increased in amplitude/frequency since the 2022 EMG/NCS.
I wondered whether anyone else on the forum has had experience of a similar progression of such symptoms and what the outcome/diagnosis was ?
For example, has anyone had slightly abnormal EMG/NCS results, which then became much more abnormal a few years later ?
Categories
- All Categories
- 13.6K Start here and say hello!
- 6.7K Coffee lounge
- 50 Games den
- 1.6K People power
- 30 Community noticeboard
- 20.9K Talk about life
- 4.8K Everyday life
- 2.2K Families and carers
- 794 Education and skills
- 1.7K Work
- 383 Money and bills
- 3.2K Housing and independent living
- 806 Transport and travel
- 626 Relationships
- 1.2K Mental health and wellbeing
- 2.2K Talk about your impairment
- 834 Rare, invisible, and undiagnosed conditions
- 884 Neurological impairments and pain
- 1.8K Cerebral Palsy Network
- 1.1K Autism and neurodiversity
- 33.5K Talk about your benefits
- 5.4K Employment and Support Allowance (ESA)
- 17.8K PIP, DLA, and AA
- 5.6K Universal Credit (UC)
- 4.7K Benefits and income