Hello out there!

Lil197027
Lil197027 Community member Posts: 16 Listener

hi, my name is Lisa, I’m new here but I’ve already been given amazing help from a few questions I had. I just needed to find the confidence to introduce myself

I’m a mother, a wife, an awesome friend!!! I have two grandchildren, a loyal and loving dog, a cat who remains aloof! I loved cooking, gardening, walking my dog, eating out with friends, going on girls only holidays and having get togethers at my house. That is me, that is still me, just some things I can no longer do.
I was medically retired from a 32 year career last September. It was devastating but I could no longer do my job. Although I struggled with my disability, I was still able to walk back then. Unfortunately I became very sick back in February. I had necrotising fasciitis on my abdomen from an infected insulin injection site. I had three surgeries, developed sepsis, had a tracheotomy so I could be put on mechanical ventilators. All this happened whilst I was in ICU and in an induced coma, so I was clueless my family were given a frightening diagnosis that I may not survive. I on the other hand, was asleep having the most awful dreams. Anyway, clearly I’m here today to tell the tale! I cannot walk, I’m in a wheelchair now. I have had amazing help, rehab and support from the NHS The diagnosis is critical illness neuropathy in my feet and lower legs. I’ve kept my spirits up with the loving help from my family and friends. But in my alone times, I think about my losses, and there are so many. I think about my 11 week stay in hospital where I felt safe. I imagine a full recovery and being able to do so much. It’s like everything is on hold indefinitely. All the tests I’ve had didn’t really give any answers, except the EMG which the Dr. apologised and said it’s quite serious. I found Scope online by accident, I knew of the charity prior, even volunteered with some work colleagues to redecorate the rest rooms for one of shops, but I never gave it a thought like most able bodied people, I am so grateful for the service. It’s my quiet corner to go to and read other people’s experiences, good or bad, it helps. I find comfort here. Thank you.

Comments

  • Doris_Scope
    Doris_Scope Scope Family Services Posts: 183 Family Services

    Hi @Lil197027

    How lovely that you felt confident enough to introduce yourself on the community. It sounds like you have had a very difficult year, but you also sound very resilient and positive.

    I am so glad that you find the online community a helpful space and that you find comfort from it.

    I am sure that you will have lots of reactions to your wonderful post. I also hope that you continue to receive positive support.

    @Doris_Scope

  • Bluebell21
    Bluebell21 Community member Posts: 4,630 Championing
    edited September 11

    Hi @Lil197027 Welcome to the Community from me too. I hope you enjoy your time on the forum. You might like to look in the Coffee Lounge for chats or the Games Den for games both under Categories. Thank you for telling us your story.

    Any questions just ask.

  • Lil197027
    Lil197027 Community member Posts: 16 Listener

    thank you, I will explore these xxxx

  • Rachel_Scope
    Rachel_Scope Posts: 1,655 Scope Online Community Coordinator

    Hi @Lil197027 and welcome to the community 😊

    I'm in awe of your wonderful positivity despite your struggles ❤️ It's easy to forget who we are when we have a disability but you haven't and it's lovely to read. I'm so happy that you find comfort here. We're here to support you and there'll be other members who can relate to your experiences.

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,999 Championing

    hi @Lil197027 welcome from me, you have been through a lot and I'm pleased You found this site, lots of support here and a great way to make friends. Pop on to the how Is your day going thread, its a great thread and a great thread for getting to know members.

  • Lil197027
    Lil197027 Community member Posts: 16 Listener

    thank you Sandy_123 and

    Rachel _scope, it’s a journey I wasn’t prepared for, but I’m finding my way. It certainly is an eye opener!! Xx