Personal trainer for SEPN1 (muscular dystrophy)

shannonandlois

hi my 2 daughters both have SEPN1 also known as rigid spine syndrome it comes under muscular dystrophy and is very rare. They are aged 24 and 21 and we are looking for a personal trainer in the south Wales near Caerphilly area. One daughter uses crutches but both girls have weak muscles

Thanks for any one that has any suggestions or knows anyone else with this condition

Jimm_Alumni

Hey @shannonandlois, welcome to the Scope community 😊 I don't happen to know anyone else with that condition but one of our other members may have experience with it or a similar condition.

I imagine the personal trainer is someone they will need to see in person? So a personal trainer that works online via video call wouldn't fit the bill?

Just asking so we can narrow down the kind of personal trainer you are looking for!

I'll just move this over to our Everyday Life category 🙂

shannonandlois

Yes face to face would be best. Ok thanks for your input.

Sam