I just wanted to bounce this off people in a similar boat, see if anyone had any advice, had been through similar things and could offer some suggestions or insight.
Background
I’m 36, have chronic pancreatitis, GERD, Barrett’s, IBS, Depression, Restless Leg Syndrome, Meralgia paraesthetica, Focal Chondromalacia Patella, Migraines, Hiatus Hernia, Urinary Retention (Catheter User)
The Pancreatitis was from Gallstones. Gall Bladder removal 2016.
In chronic pain daily, have to take Creon to eat anything, and have frequent daily bouts of flared up pain. Have previously gone through a mountain of painkillers and to be honest none really help, I have a high tolerance to most to the point it is virtually impossible to sedate me for any procedure unless it is via General. I have got to the point over the last 3 years where I have stayed with the same pain medication as it brings flare ups down slightly in the moment to controllable levels, that I can deal with. It doesn’t do much else, but now they are considering removing it.
The medication I currently take is as follows;
Zomorpth, MST Continus, Amitriptyline, Creon, Oromorpth, Esomeprazole, FostAir Inhaler, Jext Adrenaline Pen (for allergy to peanuts), Nitrofuratoin, Salamol Inhaler, Sertraline, Tamsulosin and Topiramate.
These medications I have avoided being messed with for some time because even though they do little in terms of pain relief, they do just enough to bring the daily flares to a manageable level. Without them, I don’t know where to think they would go.
previously have tried - Fentanyl patches, Buprenorphine, Tramadol, Codeine etc.
looking for similar stories and how you manage or have got through things and are managing now? They have ruled out a nerve block because something goes too close to the heart and it is too risky a procedure.
