Neuropathy in my feet, any tips you can give me? In middle of filling out PIP forms

wheelhouse
wheelhouse Online Community Member Posts: 1 Listener
edited October 2024 in PIP, DLA, ADP and AA

hi I have neauropathy in my feet I have had it about 6 years my balance is really off and I broke my ankle in 3 places in may this year N it’s not healing I’m still under the hospital n physio. Also I have had to reduce my hours at work over the years from full time to part time as I can’t stand for too long is there any tips you can give as I am in the middle of filling the forms out for pip

Comments

  • chickensun
    chickensun Scope Member Posts: 4 Listener

    Hi

    I have the same as you plus lymphodeama (probably spelt wrongly).
    for me the first thing in the morning, if I don’t move, I have no pins and needles which come as soon as I sit up. I unfortunately have no tips apart from the obvious in keeping your legs raised as much as you can.
    After the pins and needle subdue I then get a weird sensation in my feet which during the day gets worse, this feeling is very hard to describe, it’s sort of like the sensation you get when your hand/leg has gone to sleep and you need to stand up, a sort of cotton wool feeling in my feet, then at the end of the day it’s all the way up,to my knee, which doesn’t lessen until I fall asleep in bed, it’s a horrible sensation to have to put up with.
    I wear some support long socks but they don’t help much, if I’m honest..

    Wheels.

  • Rosie_Scope
    Rosie_Scope Posts: 5,610 Scope Online Community Coordinator

    Hi @wheelhouse, welcome to the community 😊

    If you're looking for tips about how to fill in your forms for PIP, it's a good idea to make sure you're familiar with the descriptors they use to calculate your points. You can read the descriptors here:

    Personal Independence Payment (PIP) activities, descriptors and points | Advicenow

    Scope have a page about applying for PIP that might be worth a read:

    Completing your PIP claim form | Disability charity Scope UK

    Citizen's Advice also have some useful information about how to answer some of the questions:

    Check how to fill in your claim form - Citizens Advice

    It's always good to have some real-world examples of how your conditions affect your ability to do the activities in the descriptors - things like what happened, what the consequences were, whether any one witnessed it. Try to add lots of details to show how your conditions affect you 😊

    I'm sure some of our members will have some excellent tips too so I hope they'll be along to share some soon.