Hi, my name is bon_gil!

bon_gil
bon_gil Community member Posts: 6 Listener
edited October 28 in Talk about your impairment

I was diagnosed and have lived with ET first in my RH and now both hands plus internal tremors. Add to the mix type 1 diabetes and having to inject insulin multiple times a day and a chronic eye condition caused by diabetes in both eyes with ongoing treatment over the next three months. I am 62 and a carer for my 84 year old mum with a husband who is often working away from the house. I am trying to find others like me who may have developed coping strategies for giving injections. My gp was really unhelpful.

Comments

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 11,776 Championing

    Hi and welcome to the community I'm doing some research in Type 1 Diabetes in children and young people so even though I don't have the condition myself I can sympathise with you.


    Another thing I wanted to recommend to you is starting off in the games den and coffee lounge where you can relax.

  • chiarieds
    chiarieds Community member Posts: 16,613 Championing

    Hi @bon_gil - & welcome to the community. There seem to be some injection aids which may be helpful. Perhaps you can discuss your need for something to assist you with a diabetic nurse or make an appointment to see a nurse at your GP surgery.

    For now you might be interested to look at the following:

    https://www.diabetes.co.uk/insulin/insulin-injection-aids.html

  • bon_gil
    bon_gil Community member Posts: 6 Listener

    thank you both.

  • chiarieds
    chiarieds Community member Posts: 16,613 Championing

    You're very welcome. Kindly let us all know how you get on.

  • bon_gil
    bon_gil Community member Posts: 6 Listener

    will do

  • Jimm_Scope
    Jimm_Scope Posts: 5,349 Online Community Team
    edited October 28

    Hey @bon_gil, welcome to the community 😊 I'm glad you've already received support from some of our other members 🙂 I hope you have better luck with a diabetic nurse or asking for specific aids than your first attempt with your GP.

    Can I ask, has your mum's house received any adaptations at all? Do you live there as well? I'm just wondering if you've had an assessment of the home to see if there are any other adaptations that could help you or your mum.

    Please do keep us updated with how you get on getting those injection aids

  • bon_gil
    bon_gil Community member Posts: 6 Listener

    hi Jimm_Scope

    Thank you for welcome. I do live with mum. We moved to our current home after my dad died and mum realised that she was more vulnerable in her home. We had the adaptions put into the new house before we moved in and mum has settled in well. I am going through what I hope will be short term loss of vision over the next few months due to having different eye surgeries in each eye more or less at the same time. If all goes to plan I should have more vision in both eyes than I have had for the last year.

  • Jimm_Scope
    Jimm_Scope Posts: 5,349 Online Community Team

    So there have been adaptations for her, but were there any considerations for adaptations for yourself? I suppose if the loss of vision is temporary that may not be considered, but I suppose it couldn't hurt to ask?

  • bon_gil
    bon_gil Community member Posts: 6 Listener

    I do intend to ask. I am due an annual review with diabetic nurse so will start there.

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 11,776 Championing
    https://forum.scope.org.uk/discussion/comment/932526#Comment_932526

    let us know how your annual review goes. We all love to hear updates from members

  • bon_gil
    bon_gil Community member Posts: 6 Listener

    Will do

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