Hi, my name is Kam! clumsy symptoms??

Kam
Kam Community member Posts: 3 Listener

Hello everyone and thank you for letting me be part of your community.

I suffer from various symptoms , some of which you may be very familiar - chronic fatigue and pain , sleep disturbance , irritable bowel, food intolerance , chronic UTI. however there is one strange symptom that I am embarrassed to talk about- it falls into 3 parts -firstly ,the less strange one- I go through phases of clumsiness, they seem to come roughly every few weeks and consist of tripping over things, dropping keys when I am putting them into locks and misplacing my fingers eg when I am texting . Another strange thing is bumping into fixed objects like door frames and sometimes people. There are many other examples but they all have in common that I am aware that my co-ordination is poor and seems to get better over the coming weeks. Could this be chronic Lyme disease or an infective agent or a non infective chronic infection or maybe just something psychological. Ive had many tests and scans which have proved negative apart from a chronic UTI sometimes.

I'll leave the other parts for now in case I'm on the wrong forum.

Comments

  • Nightcity
    Nightcity Community member Posts: 2,413 Championing
    edited November 2

    I had similar issues back in April and it was very low vitamin D and folic acid.

    it needs checking out more thoroughly though as it can be one of about six things.

  • Rachel_Scope
    Rachel_Scope Posts: 1,592 Online Community Team

    Hi @Kam and welcome to the community. We're unable to give medical advice but there may be other members who can relate to you. It must be so frustrating to have lots of tests and not be any wiser as to what is wrong. Is your Dr supportive and do you feel they'll help you get to the bottom of what's going on?

  • Kam
    Kam Community member Posts: 3 Listener

    I'm not expecting any medical advice thanks Rachel, however as you say just maybe someone else has had the same symptoms -that would be a start. Yes my Dr is as supportive as they can be.

  • Rachel_Scope
    Rachel_Scope Posts: 1,592 Online Community Team

    I'm glad your Dr is supportive. Often they can be quite dismissive when they're not sure what's wrong. Has your Vitamin D and folic acid levels been tested as Nightcity mentioned?

  • Kam
    Kam Community member Posts: 3 Listener

    I take a fair dose of many vitamins including vitamin D- my vitamin D is usually ok without being great. It doesn't' go up if I increase the dose

  • eeL
    eeL Community member Posts: 272 Empowering

    Kam It's probably not much use to you to say it but I'm autistic with related issues and I have this regularly! For me I have realised that if I'm tired or mentally exhausted or very stressed it's like my brain's normal, expected functions just desert me. My spacial awareness just goes to pot (my usual is stretching with my arms behind my head as I walk through a doorway and clouting both elbows on the door frame! lol), I bump my head alot (it's almost like my eyes just didn't see that massive sticking out thing when I bent down!), plus my manual dexterity disappears - I can't grip, text, I drop and break things - my neighbours must hate me when I'm smashing things on a tiled floor at 4am! I'm dyslexic anyway but my typing is just bonkers; I swear I've really carefully and methodically one-finger-thumped-out a word but when I look at the screen it's a load of gobbledygook. Hand-to-eye co ordination non existent. I also find this happens if I haven't eaten - I do have low blood pressure (maybe check that?) and I'm not great at remembering to eat, but I think I don't identify that the lack of physical energy also adds to the tiredness and lack of concentration. That's me anyway. I'm the clumsiest thing ever - when I think back I was always bumping myself as a kid, especially my head!