Sick of being sick

fedupnonmum · January 14

Well I am so sick of people who don't know what i suffer assuming I am not disabled its infuriating

Bluebell21 · January 14

Hello @fedupnonmum I am so sorry you are not getting understanding about your disability. If you would like to talk about your condition, there will be other members on the forum who will be able to empathise and advise how they deal with similar situations.

Please take care of yourself.

Rosie_Scope · January 14

I've definitely been there! Hope you're okay @fedupnonmum. As Bluebell says, lots of us on the community will know what that's like if you need to chat about anything.

Doglover2 · January 14

@fedupnonmum I hear you loud and clear. As someone with 12 hidden and one visual condition i say this.. In the words of one of my favourite actors, Sir Anthony Hopkins.. "What people think of me is none of my business."

I try to live by that. If they don't "understand " my decades long and life long conditions so be it.

I'm not here to explain my medical history to those who matter not.

Do not let it get to you. It's nothing but ignorance. Walk a day in our shoes.

fedupnonmum · January 14

Oh I cant even remember all of what ails me but I can list those I do remember asthma austio arthritis ibs severe pognophobia and diverticulosis dyspraxia dyscalcula dyslexia degenerative disc desise Rosatia vertigo child hood ptsd shortsighted depression i cant remember more but all but one is invisible sucks

WhatThe · January 15

They may not be as invisible as you think imagine.

Pain, suffering, struggle usually show themselves.

fedupnonmum · January 15

Thanks just having a bad day

Myrah · January 15

@fedupnonmum

I understand you, completely.

I suffer from cluster headaches, which are not visible to anyone yet im never headache free.

No one sees the pain, brain fog, impaired cognitive abilty, fainting, side effects from meds... anxiety, worry as a result..... oh and list goes on like a spiral. I look misreable, not even realising my face is so expressive.

The amount of times a get comments like 'whats up with u, u look as if u'v chewed a wasp" etc etc,

I take everyday as it comes, from just saying saying "just had a bad night" "not well", ..... I dobt even reply, im so used to it and can not be bothered with others think (to be honest, i dont have the energy to think about anything other than getting through the day the best I can)

When you get gaps during the day when ur feeling better, get some fresh air, i dont mean go for walks as its not always an option for us guys being unwell. Just sit in your garden, or open window and look outside for while, switch rooms each time or one window that u feel good infront of.

Oh and motivational videos on youtube help me a lot. It takes my mind off the outside noise and work on me.

It might help you too.

Hope u find find something that can shut the ignorant out of YOUR mind too

fedupnonmum · January 15

I have lots of hobbies that help just sometimes it get me down the fear when confronted with facil hair is terrifying to me I some times if I am alone (not often happens) then I collapse or try to run haha I always fall scream freeze or all the above

Myrah · January 15

And thats ok I guess, its natural to feel the fear and its good that u scream/cry it out.

I cabt remember the last time I cried, I had to hold it all in because I didnt want my kids seeing or anyone seeing me like that and now I cant cry even if i want to.

It all feels like a burden in my chest that i cant shake off... its a **** feeling to deal with.

fedupnonmum · January 15

I used to try explain but they never understood it's a phobia just like arachnophobia mine is pognophobia

Catherine21 · January 29

https://forum.scope.org.uk/discussion/comment/967768#Comment_967768

Morning bluebell hoping your ok and strawberry as well

Bluebell21 · January 29

Good morning @Catherine21 I am not too bad thanks. How are you today? Take care.

Sick of being sick

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