Ending pip claim

seaLantern
seaLantern Online Community Member Posts: 5 Listener

I wanted to know if anyone has experience or knowledge about ending a pip claim? My conditions has gotten better and I'm wondering if I end the claim, will there be an investigation as to why it has gotten better? Will I need to pay money back? Is there anything I should worry about? Any information on the topic is very welcom and thank you

Comments

  • letitbe
    letitbe Online Community Member Posts: 287 Empowering

    I think you have to call them up and they send you another form then you have to have another assessment. I don’t think you can just end it by telling them u feel better .
    there’s other people on forum who have much more knowledge than me so I’m sure they’ll give you much more advice .

  • OverlyAnxious
    OverlyAnxious Online Community Member Posts: 3,805 Championing

    Hi,

    If you're sure you no longer meet the descriptors then you should contact PIP and ask them to close the claim due to health improvements.

    The payments should stop immediately. You would only have to pay some back if the next payment wasn't stopped quickly enough.

    I would urge you to double check the descriptors in case you would still be eligible for a lower award. In that case, you would make a change of circumstances and then wait for assessment.

  • letitbe
    letitbe Online Community Member Posts: 287 Empowering

    also think you have to have felt ok for 3 months and expect it to last another 9 months .
    ( I’ve no idea what they’ll say if you say “ yes I’ve been ok for 3 months but I don’t know how I’ll feel in 6 months “ )

  • seaLantern
    seaLantern Online Community Member Posts: 5 Listener

    I have made the decision to move back to my home country soon which has lead to my improvement so that's why I need to cancell my claim and that where my questions come in. I'm very scared to cancell the claim

  • letitbe
    letitbe Online Community Member Posts: 287 Empowering

    I had no idea that saying you were improved would stop payments immediately. I thought you had to fill in another form and have another assessment

  • anisty
    anisty Online Community Member Posts: 598 Pioneering

    How long has your claim got left to run? If not too long, i think you'd be better to let in run on but not apply again when it runs out.

    I had a situation, many years ago with my eldest son who was involved in an awful road accident and ended up wheelchair bound and needing a lot of plastic surgery on his leg.

    He was given one year's award and there were reports in from his physio and doctors to say he was expected to walk again but it was to be a long haul.

    So he got high rate mobility. And low rate care i think it was.

    He'd only been on the award for 4 months when he found he could get out of the chair and propel himself along at quite a rate on crutches. He couldn't actually weight bear on the bad leg but he could swing his hips and throw both legs a fair distance forward.

    At that stage, his foot was still under going reconstruction and he was in a hospital moonboot thing but i thought i had better tell dwp as he had gone from immobile to very mobile!

    Nightmare!! It took them months and months to decide. They kept sending letters to say they hadn't come to a decision and they were waiting for more reports.

    Eventually, about 6 months later, they stopped the award completely and backdated the stop to the April!!

    This was because the GP had failed to reply. Grrrr.

    Of course, that meant that his disability hadn't even lasted 9 months so really he should have got nothing.

    In the end, they decided that no one could have known he would get mobile before the 9 months so we had nothing to pay back. At the point they stopped the award, he was still having a lot of medical care for his injuries and still was in the hospital boot but i was beyond fighting it to tribunal. I did an MR which failed due to lack of GP support but i hadn't the mental strength to go further with it.

    In retrospect, i should have kept quiet and let the year's award run its course.

    As soon as you upset their computer system, it stirs up trouble (in my experience)

  • seaLantern
    seaLantern Online Community Member Posts: 5 Listener

    Inot sure how long is left and I don't have access to the document saying how long it was awarded for, it was for autism

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing

    Hmm, Autism doesn't just stop, there's no cure. I'm not 100% convinced that your condition has improved as much as you may think it has. I don't have ASD myself but I live with my daughter that does have it, so I have a lot of experience and knowledge of it.

    For PIP, you don't need to be affected all of the time. Even if you have support, it doesn't mean you're no longer entitled to PIP.

    My thoughts here are that you don't understand the descriptors and you think because you maybe managing better now because you have support that you no longer qualify. This sin't the case because imagine if you didn't have that support?

    You can't just end a PIP award either because it doesn't work like that. You would need to ring to report the changes and they would send a form out to you and you would need be assessed.

    I would urge you to get some expert advice from an agency near you before you ring PIP.

    https://advicelocal.uk/welfare-benefits

  • anisty
    anisty Online Community Member Posts: 598 Pioneering

    Autism is a lifelong condition. I really think you need to take advice before doing anything.

    I'm going to take a guess at what's happened here - at the time you applied you were struggling because your life wasn't manageable for you?

    Now you have yourself settled into a good routine that you are very comfortable with. Everything seems easier and you don't feel you need any help at all. Maybe you have a well-paid job.

    If this is it then you should continue to claim!!! Remember, your autism is lifelong and you are managing now because everything is going along uneventfully.

    Hopefully, it will continue but - if something does change - am i right in thinking this could really throw you to the point where you'd become very dependent on others for support again?

    Remember, your income does not matter for pip. Even if you are well paid, it is still fine to claim pip.

    Before taking any action, you need to take advice from someone who knows you well.

  • seaLantern
    seaLantern Online Community Member Posts: 5 Listener
  • anisty
    anisty Online Community Member Posts: 598 Pioneering

    Ah - in that case, i think your claim might close without any fuss.

    That isn't what you said at the start of this post.

    Try this link. I

    https://www.gov.uk/claim-benefits-abroad/disability-benefits

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing

    I agree with anisty that you didn't state this at the start of your thread. If you had said this at the start then it would have saved all of the other comments.

  • Amaya_Ringo
    Amaya_Ringo Online Community Member Posts: 247 Pioneering

    I agree that moving overseas would require you to contact them and tell them you intend to leave the UK. Being overseas would make you ineligible.

    I also agree that autism is a lifelong condition and it's never easy to know how things are going to go. I am so absolutely obsessive about making sure everything on my claim form is accurate, but the three months rule is what keeps me from changing my circumstances. For example, right now I am working more than I was when my claim was reviewed. But my ability to engage with people varies on a daily basis, and working/masking all day generally requires a whole day's recovery before I can go again the next.

    I don't believe it's possible to have three months together of 'recovery' from the Autism impact, much less twelve. It just doesn't work like that.

  • WhatThe
    WhatThe Online Community Member, Scope Member Posts: 3,475 Championing
    edited January 30

    seaLantern Online Community Member Posts: 5 Listener14:25

    I have made the decision to move back to my home country soon which has lead to my improvement so that's why I need to cancell my claim and that where my questions come in.

  • OverlyAnxious
    OverlyAnxious Online Community Member Posts: 3,805 Championing

    Sorry, that was misleading. I meant that when the DWP accept the decision, the payments would stop immediately, so there wouldn't be anything to pay back.