Myasthenia Gravis

Cupcakesforthree
Cupcakesforthree Online Community Member Posts: 13 Listener
in Rare, invisible, and undiagnosed conditions

MG is a rare condition.In layman's terms,the messages between nerve and muscle are destroyed by antibodies .The sufferer experiences severe weakness of skeletal muscles.

The symptoms can vary minute by minute and is extremely unpredictable.My greatest symptom (Today at least !) are choking on food and a closed left eye.There is no cure

Comments

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,717 Championing

    Autoimmune disease can be quite devastating, I myself have Crohn's disease, though advances in the past decade have seen some great treatments come about. After a long hospital stay due to an internal bleed from Crohn's I was put on adalimumab which has thankfully put my Crohn's into remission for years now. I hope something similar happens for Myasthenia Gravis ❤️

  • Cupcakesforthree
    Cupcakesforthree Online Community Member Posts: 13 Listener

    Good to hear from you.

    There is no cure for me but I am "Managed"

    As you said yourself strides are being made in treatment for auto immune conditions,So,we must travel optimistically .

    Hopefully the threatened PIP cuts will affect those of us in similar situations

    I wish you well

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