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when did she post this ?
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I seen yesterday recent I think
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A month ago
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Morning Catherine hope you had a good weekend. I missed you on the forum yesterday. I don’t have MS, I have ME which used to be called chronic fatigue syndrome. I can’t pronounce the long scientific name for ME though 😂.
Yes you’re absolutely correct. I have several conditions as do a lot of us so I’m not special in any way but can only talk about my own conditions and effects. It’s like domino’s . Fibromyalgia causes pains in my legs plus cramps in hands that are getting worse. Migraines which then have a knock on affect in my arthritis in my neck and vice versa. Gentle exercise helps the muscle pain but that causes post exertion malaise . The constant stress has had a knock on effect on my anorexia ( not nerves) so I’m not eating much and nothing at all unless nagged 😂. Then there’s IBS which has been made worse by Covid. The fibromyalgia causes wide spread general pain and aches which in itself makes me tired. It also causes different pains in any particular area that can last for many months then it goes and reappears elsewhere. I don’t know if anyone else on here with fibromyalgia and/or ME has the same symptoms but I’d be interested to know how it affects others as I’ve never been on fibromyalgia or ME forums . I’ve just been diagnosed and then left and prescribed painkillers and muscle relaxants. But I imagine a lot of us on here suffer fatigue as pain and depression etc causes fatigue. Being in pain is just tiring but we get used to it and don’t realise how much we can’t do compared to others. This whole severe criteria I hope doesn’t turn out to be unfair and expect a particular symptom or the condition itself to be constant each day as even if you get a while of respite stress or over exertion can bring on a set back in any condition.
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I have fibromyagia and c.f.s
I have lived with it for 15 years along with a multitude of other health issues.
My symptoms are very similar to yours.
I have been medically diagnosed by specialist consultants so if it comes down to us being required to have a formal diagnosis I do have that evidence.
I hope you manage to have a reasonably good day but I know you will always be in pain and fatigue like I am.
Take care. X
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I cannot believe you only got 3 year award disgraceful make sure you talk to your doctor about all of this and so sorry triggering other illnesses make sure all documented if you can't go to your GP hopefully they do an e consult I did loads of emails yesterday it is so triggering I'm getting flashbacks of things I haven't thought about for a long time it's so stressful I'm just pushing people away as have no energy for anything else x
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Morning luvpink
Yes I’ve been diagnosed about that length of time too after a second infection of glandular fever. So I’ve most likely had ME 35 years. I really think if there was going to be an improvement in out health it would of happened by now .
Yes three years , well actually less than 3 . Originally assessor said two but dwp increased to three but on my letter the review date is less than three years. My first pip took two years of fighting to higher tribunal after being awarded zero points . I really hope I don’t go back to that again.
Take care and enjoy the nice weather x
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Hi Catherine,
I know but it’s the assessors, all down to luck .
Try and find time to relax Catherine, this isn’t good for our MH. Watch a good horror to take your mind off things . I get to the stage where I can’t think about it for a while so I can recharge x0 -
Sadly our condition will not improve and there is no cure for us.
I only ever got 3 year awards despite this being life long and me providing evidence how much it impacts my daily life.
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If these reforms go through I hope at least the severe criteria applies to us and everyone will conditions that won’t improve . They could save money by stopping these reassessments. I was discussing this Friday and yesterday with Chiaried who explained what they think about it . If you’re up to it check out the conversation to see what you think .
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Bless you I watch starmer reeves kendell and rayner that's a horror in its self as luvpink said all your illnesses have been diagnosed maybe they might recognise the information more if that makes sense I'm seeing psychiatrist on Wednesday which is hard because I go onto masking mode and imposter syndrome can't win oh it's hot I can't stand it
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I remember at school a friend got stuck down with glandular fever and we visit her as was off for months and she was in a dark room we spent about 20 minutes and her mum said she was tired so we left I remember feeling so so upset for her I left school early so I never knew if she returned
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Ps 28 years later is on pictures that is one I will be looking forward too trying to watch black mirror can't focus
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Yeah I agree our conditions are severe and life long with no effective treatment or cure and I have often said that money could be saved by stopping these ridiculous degrading assessments.
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I’m looking forward to that one
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I wonder how she is now . First time I got it I didn’t know what it was GP was useless. I had flare ups of bad throat every month for about 6 months. So sore couldn’t even drink water .
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Honestly I don’t understand all this nonsense the governments , Tory and Labour , sprout out about making it so we need a diagnosis. Considering the amount of medical evidence we all have and how hard we fight for pip I can’t see how anyone could possibly get pip without a diagnosis. Just another media and government lie
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Just awful stress doesn't help this has been years I think you same as me since sunak speech 2023 on high alert I try to distract myself reeves doing u turn on nom doms all u turns except this kendell reeves won't have it reeves husband works for dwp says it all really
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Starmer panicking I think though . He’s apparently told all MPs they have to vote when before he said they can abstain. He must think he doesn’t have enough support as he’s threatening them now
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