Just to say hi everyone
Hi everyone, it's been quite a while since I was here last, health got in the way of everything. A bit better now, just taking it easy. I'll try to come back whenever I can, but sending you all big hugs in the meantime + hoping you're all ok… xxx
.
Comments
-
Hey there @FeistyPigeon my favourite avian community member, it's good to hear from you!😊
Sorry to hear health got in the way, but it's good to hear things are settling a bit now. Please don't over do things. ❤️
0 -
Hi @FeistyPigeon
Lovely to hear from you, please look after yourself😀
I absolutely LOVE that photo btw!0 -
Hi @FeistyPigeon I am sorry you have been unwell. Just post when you are able to.
Please take care of yourself.
0 -
Thanks Bluebell, and big hug to you : )))
1 -
Aw thanks Mary. We can always do with a big hug : )))
0 -
Aw thanks Albus, and special coos (with flapping wings) to you! : )))
0 -
Nice to see you @FeistyPigeon! Feel like it's been ages. Hope you're well?🤗
0 -
Yes it's been far too long, really sorry not being here more often Holly, the problem is the tremor seems to get worse after bending over a screen for a while, so I've really had to cut down being online, which is really frustrating <squark!> Baby steps at the moment, things are improving slowly but it comes + goes, and doesn't help got to wait another 6 months before someone qualified can even get to see me, so don't even know quite what is wrong, just that it can get pretty bad…
But hey, summer's here + hopefully will keep improving. Hope you're doing ok too Holly? All you kind Scopies, got to say it's been great knowing you're there in the background, gives us something to hold onto through the bad moments : )))
Best stop now, but will be back <coo, coo> xx
2 -
Bless you, that's completely understandable. You have to look after yourself first and I'm pleased you're feeling a bit better. 😊 I've definitely missed your coo's and flapping feathers lol. I'm ok thank you. The sunshine definitely helps me feel good! 🤗
Hope to see you again soon! Take care.
0 -
I really hope things improve for you, missed seeing you on here but take good care of yourself xx
0 -
Aww, nuffin' better than a good ol flap while having a good coo!
Thanks Holly : ))) Sorry been so long away again, it comes + goes, but discovered walking, or rather, strutting with attitude ; ), is the best way to recover. Take care of yourself too xx
0 -
Thanks Santosha + logs of hugs to you too, how have you been doing? Glad you've been back, hadn't seen you for a while… I'll try + be back as often as I can, it's a real pain, you get absorbed on the computer + then the health plays up… Hoping it's been after-effects of treatment they gave me last summer, not as bad now as in the autumn, but there're still bad times, won't know for sure until seen specialist next autumn…
Let us know how you're doing now, will be back soon xx
0 -
Big hug Albus : ))) Hope you're keeping ok too…? Have to go now but back soon xxx
0 -
Thanks for your reply @FeistyPigeon. I always get 'this' and 'next' [when you said autumn] mixed up 🙄, I hope it's this year you're able to see your specialist though and especially as things were worse for you in autumn last year.
I had double pnuemonia Dec to end of Feb and it just all felt worse being in the winter months. I hope you have more better days than bad; I often pray I just stay stable even though most days are difficult healthwise and that I don't get worse as just hate ending up in hospital.
I realised it's 3.5yrs since I'd asked for a referral to colorectal surgeon. Had my appt two/three weeks ago and, to cut a long story short, I've been left too long and the deterioration with 5 diagnoses now has resulted in him not being able to treat me surgically at all. So I've been trying to get my head around that and what it means.
But I'm getting there with it I think. I can't bear to listen to talks about possible resident doctor's strikes as it was partly those that caused my delays being seen.
Please do take very good care of yourself, it's lovely to see you back on here even if it has to be 'fleeting' for now. Thinking of you, including when you're not on here (you're not forgotten basically!) and sending hugs and my very warmest wishes to you ❤️ 💜 xx
0 -
Hope life is improving for you xx
0 -
Hi Santosha, so sorry I've taken so long to get back to you. I had a fall (a bit wobbly on my feet now), got a couple of bust ribs and DWP have been on my back too… But big big hugs for you, I can imagine your news was such a blow, you hear this sort of thing far too often. Makes you wonder whether it could in part be intentional, if you aren't economically productive you would be a lot less expensive if you were no longer around. It's most likely not of course, rather that they're just so short of cash + staff that they prioritise those most likely to recover afterwards. But it's well-known around here (south-west) that the older you are, the longer you're likely to wait between treatments. Some years ago I had a struggle trying to get a knee operation, waited several years, I was even told by one "helpful" physiotherapist "plenty of people your age do very well on crutches". When I finally had the op, the surgeon told me he hadn't done anyone over 30 (I was in my 50s). And I've seen memos put out by NHS managers to discourage operations on older people.
As for yourself Santosha, I don't know if you'd feel comfortable giving any more details about your problem + why they can't operate. Was it a top center you saw or just the local hospital? I don't want to put your hopes up but there might possibly be other avenues you could explore. In your shoes I'd ask for a second opinion in a top center like London (or somewhere nearer you if that's too far). You should be able to get patient transport by ambulance, if you don't already, they take you door to door, they're really good, even for long distance. If I could help in any way looking up specialists etc, let me know. You could always send me a direct message to keep it more private.
The double pneumonia must have been bad, you must try and keep yourself warm over the winter (I know the costs are so high). I hope you're well on the way to recovering from that now, thank goodness we've had a good couple of months of warm weather now. As for hospitals, you sound very much like me, my instinct whenever I come near them now is to run (or really waddle) as quick as I can in the opposite direction! My Mum was just the same, she was in and out for years and couldn't stand it in the end, I think a lot of us get like that. But we have to grit our teeth and try to remember they're there to help us, nothing nasty! It's a bit like being a pet and being taken to the vets…
As for myself, the tremor keeps getting worse, it's pretty annoying as things like using a keyboard + mouse are becoming difficult, and it impacts on your confidence, you become very self-confident about it. It's this year November got to wait for a specialist, but that's just the triage. So I will most likely be looking at waiting until next year at least to see what's wrong with me. I'm trying not to dwell too much about the longer term future…
Do keep care of yourself Santosha, don't forget I'm here to help if I can. I'll try and come back to Scope more often now the ribs are recovering, I'm more "walking wounded" than anything at the moment, and got to the point where I'm fed up trying to mitigate the tremor by keeping away from the keyboard, so I'll try and look out for you. Can't do emojis but lots of <hugs> and <hearts> too xx
0 -
Great to see you @FeistyPigeon it's been a lot less avian without you around. Sorry to hear about the tremors, I can totally empathise it can get really frustrating! I hope the ribs heal up quickly.
Is there anything we can do to support you with the DWP issues?
And of course I'm sending lots of good vibes to @Santosha12 too. ❤️0 -
Very late reply but thanks Catherine : )) Hope you are keeping well too xx
0 -
"it's been a lot less avian without you around."
Bet the statues have been a lot cleaner though 😄
2 -
Aw thanks Albus, that's really kind of you : )) <coo, coo!> You should have seen the feathers flying when I tripped up!! I guess there can be downsides to strutting along with attitude… but what's a pigeon to do?
I won't go into too much detail about the DWP here, might be best to keep Mum (or in my case Mrs bird - squark!) for the time being. They're being reasonable at the moment, but it's been grinding on for far too long (on and off since last summer), seems never-ending with constant demands for more info. Not that they'd have anything to get me with, I've always been careful to play by the book. But will be in touch if they start playing me up, you never know with them…
Hope you are keeping as well as pos too Albus + able to get out in the sunshine xx
1
Categories
- All Categories
- 15.2K Start here and say hello!
- 7.2K Coffee lounge
- 88 Games den
- 1.7K People power
- 121 Announcements and information
- 24.1K Talk about life
- 5.7K Everyday life
- 405 Current affairs
- 2.4K Families and carers
- 864 Education and skills
- 1.9K Work
- 523 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 882 Relationships
- 255 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 922 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.2K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income